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  1. L

    Advice wanted

    Let's Blow this Safe! This is something I wish I wasn’t an “expert” on. My bipolar I sister also had chronic pain. Suffice it to say I have been on narcotics for the better part of fifty years and I get large monthly supplies of fentanyl. For those who aren’t familiar with fentanyl, it is so...
  2. L

    Help please!!!

    A cough is so painful it literally splays your arms and body each time? Otherwise you can breathe without pain, or very little discomfort? Pleural effusion or an intra-pleural pocket of infection differs from pleurisy in that breathing isn't a pain with each breath, feeling like an adhesion. I...
  3. L

    Antibiotics and birth control

    The best science says antibiotics don't interfere with oral birth control excepting rifampin type antibiotics. That's one source. There seems to be a weirdism where the gut reabsorbs some estrodiol altering serum concentration but again only proven with rifampin drugs. The best advice would be...
  4. L

    mom of a 16 yr old daughter

    Printer and a number of us have had the good fortune of knowing the good Dr. S. D. Freedman. And yes, where are the good GI doctors who know more than the spelling of cystic fibrosis? Unlike Printer, I have the background to go toe to toe with most doctors and GI doctors frustrate the crap out...
  5. L

    What do you do when your spouse/partner gets sick?

    I think it comes down to the consequences when you do get sick. If the average chest infection for your partner puts you in the hospital, you really need medical counseling to figure it out. Living together with isolation protocol requires separate sleeping rooms. Any compromise of that absolute...
  6. L

    Running

    Running is great as is all athletic endeavors when it comes to CF. Treadmill work doesn't do it for me because I overheat easily. Weather in most places isn't perfect and this justifies a treadmill. I would suggest a gym trial or such to see if treadmill exercise is worth spending money on. I...
  7. L

    As if CF wasn't enough

    I wish I had a lot to talk about, but pick a topic. I was diagnosed with Parkinson's disease in 2006-7. The good news is I am able to control it without L. dopa. The first thing I did after my Parkinson's diagnosis is purchase "Final Exit" a treatise on efficient suicide. Fortunately it's...
  8. L

    RIP Richard Weiss

    Simba15, I just noticed you are 52 years old as well. Maybe its impossible to avoid "an examined life" when you stare death down every day. I'm not one for milestones but seeing video of Richard and his brothers Thank you for posting the link, I didn't know the story behind "65 Roses". LL
  9. L

    Shoulder problems

    I wonder if shoulder problems are a CF issue? I have had weekly PT on my hands and shoulders for years, my shoulders going back nearly twenty years now. Both shoulders have frozen from injuries, each one time. Both shoulders had arthroscopic surgery and mobilization. If I miss a couple weeks...
  10. L

    I want kids and I'm 18

    Don't assume you're infertile just ask "guywithcf". Infertility in men due to CF it could be structural like incomplete vas deferens where sperm cannot join with seminal fluid. This means your ejaculate has no sperm hence no little Enzo's. Your sperm quality, quantity and your seminal fluid...
  11. L

    Masturbation

    Enzo, A religious magazine is not an authority on masturbation unless it has a nude centerfold, if you want to know if it is a sin, look for masturbation in the Ten Commandments, it’s not there. Read what is said in The Bible if you are curious. The whole idea of having a Bible in a language...
  12. L

    Trying to gain weight -- am I doing everything?

    Marc098, and CFers wishing to acquire of maintain quality muscles. Who could disagree with such a convincing argument? Sorry but I don’t Facebook, my hope is you have a well tempered and scientifically based body building methods to impart. A number of body building health enthusiasts have...
  13. L

    Advice on Stomach Issues?

    Praises for Dr. Steven Freedman are well deserved. A truly vexing CF GI problem is an exercise in futility with most GI specialists. Any CFer who is getting nowhere with a GI issue needs to see Dr. Freedman. He has done seminal research on the impact of CF on the gut, pancreas and bile/hepatic...
  14. L

    Is having CF a good enough reason to get a Medical Marijuana Card?

    It probably is a familiar situation shared with many 18 to 26 year olds. Divorce is a tricky and occasionally impossible issue for kids to navigate. Being born with CF and diagnosed so young, the stresses on a family due to fear, guilt and other concerns can make relationships and family...
  15. L

    Is having CF a good enough reason to get a Medical Marijuana Card?

    Enzo, The letter you describe will be fine. In the future, all you need to do is call your doctor's office and request a copy of whatever records you want or need. People do it all the time for a hundred legitimate reasons so no flags are going up with a records request. Some offices charge a...
  16. L

    prednisone withdrawal question

    Prednisone acts as an antiinflammatory drug, reducing congestion around infections for efficient infection fighting. It also puts your body in overdrive to fight the infection. I react rapidly to prednisone and I occasionally would get rebound headaches that were very intense. As bad as standard...
  17. L

    Is having CF a good enough reason to get a Medical Marijuana Card?

    Enzo, The short answer is yes, without question, CF is bad enough to qualify for MM. CF is a condition so severe, you have a virtual guarantee that no MM card would be denied, or even questioned. Barbers with sciatica or such is a common medical reason MM cards are issued. I'm not knocking...
  18. L

    Trying to gain weight -- am I doing everything?

    Between attempting to optimize my digestive health and knowing several people wishing or needing to put on some meat, I’ve been somewhat over-involved in the issue. When I increased my enzymes three years back, my peanut butter feces began to resemble a healthy stool and my weight went up for a...
  19. L

    How bad is smoking pot?

    As for a pre-employment drug screen, check with your friends and find where to get a pee kit. Just like the movies, a small container with drug free male urine and a means of delivery at the time of the test slips in your shorts and you're a drug free employee. Every young adult I have met seems...
  20. L

    Research on sodium bicarbonate - has anyone tried nebulising it?

    I have been caught up in "The Bacterial Food Web May be Key to Cystic Fibrosis" post and the nut of that topic winds up with a different approach to the issue of our special lung mucus. Buffered solutions, especially buffering an acid, sodium bicarbonate could be utilized in part, to raise the...
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