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Okay...this may sound like a silly question OR one for Reeces' doctor, BUT I thought I'd ask here first. Reece is due for his next TOBI treatment Sept. 4th. Do I go ahead & get it refilled by that date & start it...OR do I call the doctor & ask first. This is the first time I have had to...

I've been listening to Jerrys' podcast about airway clearance. When do ya'll do pulmozyme. Reece does albeutrol, vest, pulmozyme, & TOBI, & flovent. I was just wondering if he should do it before the vest. As I've heard it done both ways!

<img src="i/expressions/present.gif" border="0">Today is Reeces' 4th birthday. We had an awesome time! We ate pizza & played games, played in the pool. Reece got to ride in a police car too!!!! Make the sirens go off & push all the buttons in the car! He was sooooo excited!!! Well Im off to...

At church yesterday one of Reeces' friends was there with walking pneumonia! (same class) His mother a well educated,in the medical field,& close friend told me he was NOT contagious. Should I be worried? I thought any type of lung infection was to be considered contagious. I am also his...

Just wondering if anyone else has myspace....Ive been sucked into it...Im addicted!!! LOL You would think Im a teenager again!!!!

We have been at the pool all day & immediately I noticed Reeces' fingers to wrinkle up! I checked his toes..the same thing! We were in the pool about 2 hours....& when we got out his whole hand (top & bottom) were wrinkled up as were the tops & bottoms of his feet! Is this CF thing? I searched...

We are getting ready to go on vac...only 2 hours away but its NOT home. I was wondering how you pack the big ole IV pole? Is there a travel size pole? LOL Just wanted to see what yall do. Thanks.

What kind of exersises could Reece do? All he really does his ride his bike. Maybe once a week the neighborhood kids come over & they run around the yard....but thats about it. We dont have a trampoline...thought about getting one but nervous about the safety issues it comes with. Any...

I know like a "cold" or just being run down but what else? Just seeing if I can prevent Reece getting sick all the time. Thanks!

Just wondering....Reece has been on them 2x this year. He averages about 2~3x a year.

How BAD does it hurt? Do they do it right there in the office? How long after will it hurt? Reece MAY need this done tomorrow....although I dont think its that bad...I've seen it waaay worse! What else can they do besides "burning " it off? We have tried the creams..works for awhile then it...

Just thinking how Reece is ALWAYS sick.....wondering if its the way we clean our neb cups or wait too long to replace them. We have the disposable cups for his albeutrol and pulmozyme & Pari plus for the TOBI. I have never boiled the disposable kind...I use vinegar once a week.....BUT after...

Reece has been off IVs for about 2 days now. I noticed that he started walking funny about a week ago. Its like his shoes are too small OR hes not bending his ankles..... his doc looked at his legs and did some neuro tests....thinking it could be a balance thing due to the IVs.....this is what...

Our dog had four puppies on my husbands birthday in April. We are gonna keep one BUT we havent figured out which one. One of them is all black and very playful already ( hes the boy) go figure...lol... The girl is kinda laid back & she is also black w/ brown markings like a rotweiler.......she...

Just wondering if you use your vest while you are acessed? It is soooo time consuming to do "love pats" every 4-6 hours, (he is also getting iv antibotics every 6 hours (4x day) and one that is 1x day...so a total of 5 iv antibotics a day... WHEW!!! It would be way easier to use the vest. BUT I...

This morning Reece woke up coughing his head off. He got a nosebleed and was coughing up alll kinds of stuff. Ever since he started TOBI he has been coughing alot. (TOBI is treating Psued.) AND coughing up junk. This morning had blood streaked through it and bright green sputum. As I was...

Our walk is tomorrow. What is the usaual done at ya'll walks? Do you have games, clowns, music? The last three that we have attended have been ok. We usually talk about updates on the local CFers. Then we have a nice "rose ceromony". 65 Roses are give out to one person on a team and they call...

The last 2 mornings he has been coughing this up, I cant tell if its saliva mixed in with it or if its someting else. Can you help me out...have yall coughed up stuff like this. Reece has never really coughed up stuff AND spit it out. Its probably normal BUT just wanted to make sure. Thanks.

My dream come true....Reece

Well Reeces' doctor just called....he cultured positive for that BIG ole MEAN bug....Pseud. He will start TOBI and some nasal spray for possible allergy!? I am feeling pretty overwhelmed. I have been worrying about his mickey button..his cough that wont go away....his nasal congestion (making...