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When we went to DisneyWorld last month I started having pain in the heels of my feet. By the 5th day we were there every step was horribly painful. To make it worse if I sit for more than a few minutes the pain is unbearable when I stand up. I thought it would go away after we got home and...

I am sorry to ask so many questions the past few days, but I have another one. Courtney is home from school again. She has had a severe headache for 2 days now, and very tired. As those of you that are military know, it is difficult to get a same day appointment in the military hospitals. I...

I am VERY concerned this morning. Both Courtney and Cameron who go to the local middle school are home sick today. Lauren, who goes to the high school is fine. My friend just called because her daughter that goes to the middle school has been breaking out in welts everyday. The doctors feel...

I swear every time I open my big mouth and talk about how well Courtney is doing something happens to her! Courtney had her first cross country track meet today. When I saw her about half way thru the race I could tell she was struggling. I try very hard not to be the over protective mom, so...

I am glad to report that Courtney's pulmo visit was GREAT. I am still not quite understanding how to read her PFT results other than knowing that 100% is REALLY GOOD. She also had her gastro appointment this week and the doc is very pleased with her weight gain. She is now 80 pounds. I am...

I am going to post some pics. Sorry if they come out huge, but I am not sure how to scale them down. They are of some of the water damage caused to our house from the flooding. My concern is Courtney. Does anyone know if this can affect her lungs? Will mold have a negative affect on CFers...

We are making national news today due to El Paso, TX flooding. We are in the middle of the desert, and 4 days of rain is just more than this town can handle. We are also right next to the Rio Grande River which is expected to overflow. The rain does not look like it is going to let up for the...

I thought I would start a post to let Ihatecf know which meds are being sent by everyone. I just sent off 2 bottles of Ultrace MT20 and a bottle of vitamax. I hope they get to you safely, and you are in my thoughts. Seana

I made a montage of the village for your kids to see. It is truely an amazing place to stay! Hope you like it! I know your family will have a blast there!! There were wish kids from all over the world there, it was wonderful! Seana <a target=_blank class=ftalternatingbarlinklarge...

We are leaving Tuesday morning on our Disney Wish Trip. I have to work tonight, and will be packing all Monday, so I will be signing out till Tuesday after next. I hope everyone has a wonderful week!! We will take lots of pics and I will post when we get home. Seana vmhoward- we are...

As my hubby and I are going to sign the final paperwork for our life insurance policies today I was wondering how many of you CFers were able to get life insurance? When I mentioned getting the children some life insurance, and told him about Courtney, you could see our agent cringe. He said...

fi yuo cna raed tihs, yuo hvae a sgtrane mnid, too. Cna yuo raed tihs? Olny 55 plepoe tuo fo 100 anc. i cdnuolt blveiee taht I cluod aulaclty uesdnatnrd waht I was rdanieg. The phaonmneal pweor of the hmuan mnid, aoccdrnig to a rscheearch at Cmabrigde Uinervtisy, it dseno't mtaetr in waht...

Does anyone know what a spider bite looks like? My oldest daughter was bite by a brown recluse (sp?) when she was around 8 years old. We took her to the doctor fast enough that we were able to control the spread of infection and poison. She called me today and said she was bit again. I...

I know some do not want to talk about death around here but I really wanted to share this website. I was never really sure what I wanted done with my body after I die. Cremation, burial.....just was not sure, UNTIL......... I found the website called LifeGems. They take your ashes (they can...

I wanted to call someone right now because I am SOOO excited, but I can not think of anyone that would understand why I am so excited. I know alot of you here will understand my excitement. Courtney called right now and SHE HAS GAINED TWO POUNDS!!!! WOO HOO!!!! Courtney is 13 years old, is 5...

Okay....I am trying to figure out how to ask this question properly.................. I grew up always being told "Do not use alot of salt, it is very bad for you. It will make your blood pressure rise and give you a higher chance of stroke when you are older". I understand the concept that a...

I read both of your replies on the Remission? post. I am a firm believer we can get the pounds on Courtney she needs, but can do it with healthy foods. After reading your posts I would love to hear what a "normal" days menu is for you. Breakfast, lunch, dinner, and snacks. I would greatly...

Happy Father's Day to all the dad's out there! Hope you have a wonderful, relaxing day! Seana

Can you PM someone if they are not online, if so....how? Seana

Hi Allie! I got my shirt today and I LOVE IT! I want all of us to wear CF t-shirts on our first travel day of our Disney Wish trip next month. Here is my question............... I am going to order one more cure CF because I love my daughter t-shirt, then I am going to have Courtney wear the...