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    Is what I have TOBI or Tobramycin?

    So my doctor has just switched me from Tobramycin, to TOBI. I had a mix up with my pharmacy on friday - they had decided to send me Tobramycin regardless of my prescription due to the fact that it would be easier for me to measure then the TOBI. Well I tried to straighten it out with them, and...
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    Prayers and Thoughts

    Hey all, I'm just posting to let you know that Martha, the wife of one of my friends from the US Jesse, is supposed to be going into surgery for her double lung transplant right now. She got her third call this past afternoon, so please send your prayers and thoughts her way in hopes that...
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    Symptoms - self diagnosis.

    So since being out of the hospital I've been feeling great. Energy great, cough great, just feeling great. This morning I was also feeling fine too. That being said, this afternoon and evening has been hell for me. It starting out this just suddenly feeling really tired. My sugars were kind...
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    I'm Baaaaack!

    Hey guys! Well I'm finally home. I got discharged from the hospital this morning at 10am. It is soooo good to be back home. As soon as I got home today, I took a nice long shower sans PICC, I did my hair (I've been wearing bandana's for the past 2 weeks), and believe it or not, was feeling...
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    Update

    Just thought I'd let everyone know that I'm being release either friday evening, or saturday morning! Most likely friday due to the long weekend. I'm definitly feeling better, no more tight chest, no more blood, no more pain in the lungs. Things are looking up.
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    Update!

    Hey Guys, long time no chat! Before you wonder, yes I'm still in hospital, but I'm aloud passes to "escape" the hospital. Following is an update on whats been going on: Turns out that I don't have an active infection, but rather I have plugs. The plugs are causing my airways to tighten, etc...
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    Going into hospital

    Just thought I'd let everyone know that I won't be on the boards for a little bit soon. I'm going in for IVs either sometime today or this weekend depending on when a bed is available for me. My doc has my bed order put in as Urgent, and that I'll be in for a short time. I'll let everyone...
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    Questions about Colistin

    So I just did my first dose of Colistin, and have some questions as I've never done this med before. My instructions for use are as follows: I'm to inject 2mls of saline into the 150mg bottle of Colistin and mix it up. I'm then to draw 1ml of the mixed solution into my neb and use that, and...
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    Live webcast today

    Just thought I would let every one know there is a live webcast on the Canadian CF Foundation site: <a target=_blank class=ftalternatingbarlinklarge href="http://www.cysticfibrosis.ca/page.asp?id=272 ">http://www.cysticfibrosis.ca/page.asp?id=272 </a> Starts at 9:00 am EDT today.
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    IVs and when?

    With a few people on here going off to the hospital, it made me start to think. I haven't been in hospital for a chest infection in about 10 years. For all you guys who go in on a regular basis, at what age did you start going in regularly, and what was it that made you decide that you needed...
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    Cute little quiz for all us germaphobics!

    <a target=_blank class=ftalternatingbarlinklarge href="http://www.okcupid.com/tests/take?testid=9484519437244875114 ">http://www.okcupid.com/tests/t...d=9484519437244875114 </a> Try it out, its cool! I am: The Clean Freak Joy...I scored 56! You can never be too clean, and you know just what to...
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    Hemoptysis + Tobra

    So I'm having a hemoptysis episode right now. I'm not coughing up streaks, but rather like teaspoons. I've had hemoptysis in the past, but my question is, is should I be doing my TOBI with my episode? The reason I ask is because I've never had an episode while on inhaled meds, and I'm not...
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    CF Arthritis Question

    Ok, so I'm a little green behind the ears when it comes to this subject but here goes. How do you know when you have arthritis, or even the onset of arthritis? The reason I ask, is because lately I've been getting joint pain in my ankles and wrists. The ankles started about a few months ago...
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    Support CF

    So an online friend of mine's wife has CF (he was at one point a member of this forum last year, but hasn't posted since). She's currently on the waiting list for a double lung transplant, and to raise money for the transplant he is selling CF shirts and other assorted stuff (t-shirts, hoddies...
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    Chat?

    Anyone for chat?
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    Malabsorbtion Problems?

    Ok - so sort of an embarrasing topic to bring up for myself, but here goes. All responses would be appreciated. My CF is worse when it comes to my digestive system. I've always had problems with malabsorbtion growing up, and since being on the enzymes I've been on, have been doing fine...
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    Cleaning the Acapella Choice

    So I just got the Acapella Choice yesterday, and just had a question about cleaning it. I'm wondering what others do. My doctor told me that I could easily get away with cleaning it once a week in warm soapy water and then let air dry, or I could put it in the dishwasher. I don't have a...
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    Tilt Board?

    Just curios as to how everyone on here does their physio in regards to drainage. As a child I use to have a tilt board, or physio bench as its also known, where I would lay on it upright and do all my positions, then switch and do all my positions laying down upside down. A while back I lost...
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    2005CFmom's Prize

    TERI Gender: Feminine Usage: English Pronounced: TER-ee Short form of THERESA THERESA Gender: Feminine Pronounced: te-RAY-sa, te-REE-sa From the Spanish and Portuguese name Teresa. It is of Greek origin, and its meaning is "late summer." Popular variant of Theresa. The first bearers of...
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    The Game

    Welcome to the game part 3. Rules: 1. Only yes or no questions 2. One question per response, per person 3. Keep outright guessing like "Is it a lamp?" to a minimum I will be very impressed if someone gets this right away! Clue: Its on my boyfriend's headboard.
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