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Hey i have had kidney stones two times in 6 months. the second last week, i wonder if cf and kidney stones has somthing related? what can i do to not get it again.its 50% chance i will get kidney stone again. Hugs /Marie

Hey everyone! As you may know I have had really problems with bad side-effects from the fungus med (v-fend). I have been at my tx hospital and finally after like 2months I got the answer that is ok to try Noxafil another fungus meds. Its new here in Sweden so I don´t know how its in USA? I...

Hey everyone If its the first time in New York, What can be importent to see and do? I know its a lot to do but i going to be there only 1 week. I should be grateful for some answers <img src="i/expressions/face-icon-small-smile.gif" border="0"> Hugs/Marie

Hi everyone! How are you? yes i know it has been awaile since i wrote an update here. Things are going good. i have start swimming and hopefully can compete in the european tx games next year in Sweden, but i will see. I had eye check up at the clinic on 1st of june, my better eye were...

Hey I have problem to sign in to the chat room. even if i type usename and password right. Have anyone had this problem? Hugs/Marie

Hello everyone just a quick update. On monday february 2th was my tx anniversary day. So i had my 2years check up this week, just come home and good news<img src="i/expressions/face-icon-small-smile.gif" border="0"> Since my last eyesurgery my right eye has progress a little bit, I can READ in...

Hey thank you all.I wish i could say its better but sadly not yet. My medication i had got, didn t help so i called my eye doc, i got a new medication that hopefully helping.i going to try that 2 days and see if it getting any better if not i going to call again and i guess i must go in to the...

Hey everyone just a quick update from me, 27/11 did i have a eye surgery, they removed cataract and the oil (witch protected that the fungus should not do more damage ) after a 3hours op it was finished , the surgery whent well,and my doc say just hope for the best really. i had a check up...

Hey how are everyone? I know it has been a really long time since i write a message. Things are pretty good here,i have still problem with my eyes but in the middle of november i going to have a surgery on the right eye, i hope to get much better vision then. i will see. Hugs /Marie

<b>Hello everyone you maybe have read all updates that Marjolein has write. Thank you so much Marjolein. so the summer was not excatly what i wanted it to be. been in the hospital almost all summer and like 3 diffrent hospitals before i got to my tx hospital and it was my cf doc who send me to...

Hello I hope everyone have a good easter<img src="i/expressions/face-icon-small-smile.gif" border="0">. Now till my update from my 2month check up. Thanks Marjolein for updating this site again <img src="i/expressions/face-icon-small-smile.gif" border="0"> Even if Marjolein has write about it...

Just a quick update, I flying down to Gothenburg for my 2month check up at the transplant centre today. All tests start tomorrow (april 2) and i going to be there till at least april 4. Wish me luck <img src="i/expressions/face-icon-small-happy.gif" border="0"> Hope everyone doing well. Hugs...

Hello everyone! I did my 1 month post tx check up today. everything went well So I going home tomorrow after that the bronc show i was a 0 <img src="i/expressions/face-icon-small-happy.gif" border="0">. scale 0-3 and 2-3 is rejection 0-1 is no rejection. So i´m really happy <img...

I going to start my 28 days treatment with tobi and i have a eFlow neb now. Just wondering if people use to have like a filter or somthing when you do your tobi treatment ? so not so much of the medicine get in the air. Just somthing i was thinking about. glad for some answers <img...

Hello! sorry i haven´t update on how it going for Marjolein in a long time. It´s because i have not had any computer. But maybe Marjolein´s sister have give you all a update and you maybe have read her website too. Marjolein seems to do good again after the rejection. Juse hope she countine to...