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    Kawasaki Disease

    Long story short, Parker broke out in a rash and fever on Wednesday. Took him to the doc and they said he had Roseola and Pink eye. Started him on the ointment for the eye on Thursday. Still had a fever Thursday and his rash was not typical of Roseola. It started on his extremeties and face, and...
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    Dry Cough

    We left for a small vacation last Wednesday, and of course DS starts coughing on the way. It's a dry cough - sounds dry and he hasn't had a runny nose at all. His voice is also a little raspy. I did call the clinic and she had said to start albuterol (of course we didn't bring that) and up his...
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    Newly Diagnosed

    Hi all. I know I don't post much, but I just wanted to share something tonight... I usually log in here at least once a day. I look at the Families section, then the Adults section, and then take a deep breath before I look at the "Newly Diagnosed" section. I'm always so happy when I see no...
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    Swallowing enzymes

    Just curious to how old your child was when they started swallowing enzymes. I know that DS is not even 18 mos old yet, but he takes his other meds so well that I went ahead and tried an enzyme with a McD's straw, and it worked perfect. Is it too young?
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    CF Color

    Silly question for most of you, I'm sure. The bracelets that we have are blue, but most of the ribbons are purple? Can someone put me straight on this? I'm going in for a new tat this weekend and will be doing a rose for my son, kinda want to get the color right <img...
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    Poop Question

    I was just wondering if anyone remembers what they're children's/grandchildren's/ or what not, bowel movements looked like prior to diagnosis? I have a nephew (not related to DS w/cf) that is a year old and has had a problem with weight and intestinal problems. He was 17lbs a month ago and is...
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    Neb treatments

    After reading the post about the order in which you do nebs and cpt, I had a question that I'm sure has been asked, and I might have even asked it at one time, but am now more curious. Why is there such a difference in what kinds of nebs the docs prescribe? I know that some of them are because...
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    Vest hoses

    Ds's Vest hoses seem to be coming apart. Sorry if this has been asked previously, but the little ripples on the hoses are coming apart, there's no holes that I can see under the ripples, I was just wondering if this was normal and ok? Thanks in advance!
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    Sippy Cups

    Has anyone found any sippy cups that are good for your CFer? I swear I've tried every kind. . . The ones that Parker loves still seem to have milk in the sipper after going through the dishwasher (I can see it because he drinks choc milk sometimes). I got the ones with straws, thinking that...
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    Great Strides

    Ok. I have a couple of checks that people have written to CFF for the great strides, can I somehow get it to go into my team donations or does it just go to CFF?
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    Calorie intake

    Not sure how many people actually count the calories in their child's diet, but I was wondering what usually is a starting point for a one year old? I'm starting to switch DS to whole milk mixed with cream, and am trying to figure out the right mixture. I'm thinking if I can get 200 cals in 8...
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    Asthma

    People at the CF clinic have talked to us since Parker first started his albuterol that if it stops him from coughing, he has some sort of asthma component along with his CF. I've also hear that this is NOT true. . . does anyone know which is correct and why they would be saying that? Parker...
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    Mic-Key balloon

    Parker has had the Mic-Key now for a few weeks and we are supposed to be checking it every week to make sure there is 6mL of water in the balloon. The box that we received for the extra tube had a nice 10mL syringe with what I believe to be a catheter tip. This worked great to check the water...
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    Culture (staph & h-flu)

    Parker has cultured staph and h-flu the last couple times he's had a culture (both within last 1.5 months). Since the last time (week and a half ago), he's gotten over his cold and has gone back to his regular self, only coughing maybe once every other day, just to clear things. Well, in the...
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    11 month old

    Parker is now 11 mos. old and obviously starting to try many foods. Last time DH and I went shopping we made sure to find as many fatty things as we could find. I was just wondering, for those who have gone through this stage, what are the fatty foods that your little one seemed to like? For...
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    Nutrition

    I know that there is a nutrition section, and I plan to write this there as well, so if you want to comment there, that would be great! I just know how much traffic "families" gets. Parker is now 11 mos. old and obviously starting to try many foods. Last time DH and I went shopping we made sure...
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    Great Strides

    I was wondering if anyone has gotten WFB to donate to Great Strides. DH is employed there and he has sent me a pretty long email detailing how to get them to donate. I am a little confused about this. Has anyone had Wells Fargo donate, if so, how do we go about it? (DH will be speaking with...
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    Decided I should

    I've struggled more than I should have in wondering if I should participate and be a leader in Great Strides this year. We have so much going on and I thought that it would just be too much, but it's hard to pass up such an opportunity to help CF research, that I decided to just go for it. SO...
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    Check it out!

    Can you redo this link? Was looking forward to watching, but link does not work. Thanks! <img src="i/expressions/face-icon-small-smile.gif" border="0">
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    Anyone awake?

    I'm hoping that someone out there can help me tonight. DS has gotten the cold that has been going around our family the last couple of weeks. It's really nasty, lots of mucus. I was wondering when I should start worrying. . . I'll probably call the doc anyway but wanted to start here first...
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