Search results

went to dr. today.... fev1 down, so i was depressed right off the bat, she listened to my lungs, said some crackles lower left (where its been hurting) so glad i went today,( originally said they were all booked up )did a chest x-ray... when i got home i called my PA , she said the x-ray Report...

got into so carolina a 6 pm sun night , left from new york at 5 am this morn. pretty beat, will be up and out early tomorrow (we hope) and get to jupiter island early afternoon (again we hope) miss everyone.... Joni 55 y/o f w c/f

Were leaving Sunday morn. hope to get to south carolina by sun. evening, does anyone know of a good hotel, near 95 in south carolina to stay at? let me know if you do.. thanks, joni 55 y/o f w c/f

If you would like to see my 14 and 17 year old sons perspective on having a mom w/ cf check out raising a child when the parent has c/f on the adults w/ cf (under adults) forum... by , i am the queen of everything...melissa thought it would be nice to have a kids perspective, so i asked if they...

hi everybody, i'm back home, what a joy the hospital was, besides not having the nurses that i had for the last eleven years (that was a heart breaker) from the time i was at the hosp. mar. 28th to today, i was moved twice.... yesterday,,the nurses said they needed my room again , i waited all...

hey guys, sitting here in hosp. and wanted to say hi.. and to thank you all for your thoughts and to thank terri and melissa for the phone calls, they really cheered me up. should be getting out tues. (not that i'm counting)... Joni.. 55 y/o f w c/f

i'm taking my lap top, don't know if it will work at the hosp. if not i'll be back in about a week, will miss you all.... God Bless... Joni... 55 y/o f w c/f

Hi guys, well still no room at the inn, not that i'm upset about it mind you.... i want to thank you all for your kind words, i know it's probably the best thing for me, to go in for a tune-up, but the anxiety before everything gets settled is intense... i'll let you know when i get the dreaded...

Hey guys, how is everyone doing ? i was away a couple of days.... went for a checkup this morning and my doc suggested i go in for a tune-up.. it's been about six months since my last Thank You God and they feel it's time... I totally got caught off guark ( it's a little easier when your feeling...

sometimes i think some of my family members think i am to extreme with germs,sick people etc. but i am trying everything possible (and sometimes that doesn't even work) to stay well and out of the hospital...my son,daughter-in-law and my grandson live with us... they were away a few days...

I was just wondering if anyone is going to the family education day at the Hyatt Regency Wind Watch Hotel, Hauppauge n.y., tomorrow feb. 10th.let me know, maybe we can meet eachother... Joni... 55 y/o f w c/f

Just wondering if any one is going to the family education day at the Hyatt Regency Wind Watch Hotel in Hauppauge, n.y., tomorrow feb. 10th. if you are let me know, maybe we can meet eachother... Joni... 55 y/o f w c/f

N.Y. area people.... does anyone know the best hospital/doctors...in the n.y. including the city)area..i live on long island and wonder if anyone knows where or who the best is supposed to be....i go to stoney brook now, tried l.i.j.(wasn't crazy about it ) i like stoney brook and my docs. but...

Hi everyone, I hope you all had an amazing Chirstmas, We had Christmas Eve at our house this year (been wanting to do it for several years but haven't felt well enough to ) It was insane we had 12 adults and 14 kids yikes !!! Just getting back on and wanted to say hi.... Hope you are all well...

Hi guys, I was just wondering ( and don't want to sound like a big baby) but how do you all stay positive. It becomes overwhelming at times. Sometimes i get so scared and depressed. I don't want to live this way, i want to enjoy myself as much as i can. Don't want to always be thinking about...

I just coughed up some blood. It has happened it the past, but the last two times have been very scary. I'm on Blood Thinners and it's very frightening. Has anyone been on blood thinners and had a hemoptasis? Last time it happened it lasted about six days.......Joni 54 y/o w c/f

Hi Everyone, I never really introduced myself, sorry not to good on computer yet. Anyway my name is Joni. I will be 55 years old this December. I have four sons, ages 31,28,16 & 13. I also have a one year old grandson. I have been married for 17 years. I was diagnosed 11 years ago. At...

Hi Everyone I am a 54 year old female w/cf I posted this message on the adult forum. Don't want to scare anyone, just want to share my experience so that you can be aware. A...