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    Largest gene therapy trial for cystic fibrosis begins

    <a href="http://medicalxpress.com/news/2012-03-largest-gene-therapy-trial-cystic.html">http://medicalxpress.com/news/2012-03-largest-gene-therapy-trial-cystic.html</a> A consortium of researchers from Oxford University, Imperial College London and the University of Edinburgh will start...
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    How far do you travel to get to your clinic?

    I am STONGLY considering swtiching clinics. I am not asking this because i'm trying to justify anything that is easily done. This is more just a conversation sake thing, interested to see how far some people go. Right now I goto UPENN-HUP which I live 5minutes from, but am probably looking to...
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    TOCRIS Bioscience

    Was poking around the internet and found TOCRIS Biosciences site... I found it quite interesting. They have several compounds for Cl Ion channel transporting and blocking. Cool thing is you can buy them... if you are wealthy enough. Almost forgot the link:<a...
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    Good website explaining CFTR and many of it's associations

    <a href="http://www.genecards.org/cgi-bin/carddisp.pl?gene=CFTR">http://www.genecards.org/cgi-bin/carddisp.pl?gene=CFTR</a> Warning: You might explode your mind. There is SO much here I feel like I fell into heaven on earth. Also at the bottom there are several links to CFTR databases some...
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    CF GeneE App by Vertex!

    Review by Havoc - Very cool app! Head on over to the TechCF site and check it out! <a...
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    Bernie Siegel - Streaming Live at 1:30PM EST

    <span>Bernie Siegel will be speaking today at 1:30pm EST Live streaming at<a href="http://www.marblechurch.org/" target="_blank">Www.marblechurch.org</a><span>
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    Make airway clearance for your kids more fun and effective!

    <a href="http://www.techcf.org/index.php/2012/02/23/flower-breathe-by-defitech-visual-airway-clearance-measurement/">http://www.techcf.org/index.php/2012/02/23/flower-breathe-by-defitech-visual-airway-clearance-measurement/</a> This is about as good as it gets! I hope this helps some of you...
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    Does your text run off the page in some posts/threads?

    To those who might find it useful, I know I have issues in some posts/thread where for whatever reason the texts keep going and I can't see the end of it. The simple and easy solution (not sure why it took me so long to realize it) is next to your screen name on the left upper panel above where...
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    PFT Goal's thread. Trying to achieve 60% FEV1.

    Contents Deleted
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    Bitter sweet victory!

    Got my determination for SSDI! I was approved!!!!!!!!!!! What a relief, on the other hand it's bitter that I qualify just thought i'd share... Anyone who is looking to apply I highly recommend Beth Sufian's lawfirm.. I was approved in 7 weeks!
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    Implications of bodybuilding and Pseudomonas!

    So as always I've been digging deep through the NIH and putting links together elsewhere. Generally speaking those with CF who bodybuild fairly well and some even come back from situations with the odds fairly against them. None the less I started to ask WHY is this? I believe I may have found...
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    ESPN and Inifiti charity event! VOTE!

    <span>Infiniti has teamed up with ESPN to donate $100,000 to a NCAA Men's Basketball coach based on votes the coach gets.<strong>Kevin Willard</strong>of Seton Hall has chosen the CFF as his charity. So vote for him in the East Bracket to get to the "Final Four" where he'll face-off against...
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    ESPN and Inifiti charity event! VOTE!

    <span>Infiniti has teamed up with ESPN to donate $100,000 to a NCAA Men's Basketball coach based on votes the coach gets. <strong>Kevin Willard</strong> of Seton Hall has chosen the CFF as his charity. So vote for him in the East Bracket to get to the "Final Four" where he'll face-off against...
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    Crushing Enzymes?

    I was reading around on a CFers question somewhere about how many enzymes to take with tube feeds. While I could not answer the question I was reading some of the responses. Apparently there used to be a powder called Viokase but it isn't made anymore or at least sellable in the US because of...
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    Altera and Tobi anyone?

    So I was at clinic on Monday and asked about getting compounded Tobi, which they didn't have a problem with. I stated I already had a box of Tobi Novartis brand Tobi. The NP said I could take HALF a vial of Tobi brand Tobi and use it in the altera and it would be the same as compounded tobi...
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    12 week transformation contest! - "Lifting for life" Progress thread!

    www.bodybuilding.com/transform for details. I am creating this thread to show the CF community what can be done! I will post progess and pictures as I go with what I am doing! The contest is basically all of 2012 they don't pick a winner until 2013 from what I understand. You can start your 12...
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    Epic Systems iPhone/iPad/iOS Device App - Must have for CF'ers

    <span style="font-size: xx-small;">Removed
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    Pennstate finds virus that wipes out cancer in one week.

    <a href="http://www.pennlive.com/midstate/index.ssf/2011/11/lab_at_hershey_medical_center.html" title="" target="_blank">Virus</a>used wipes out cancer in a week! All kinds too.<br>I know researchers have been trying to use viruses for a while to transport the CF genes into the airways, but with...
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    Note to self

    Put Aerosole head in Altera before putting Cayston in it. That is all.
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    Guess my FEV1

    Appointment tomorrow... Feeling better than I have in longer than I can remember... who wants to guess my FEV1 last 9 months have ran from 24%-30%.<br>
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