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There are a lot of sicknesses that ressemble CF (ex.: Kartagener's Syndrome or PCD, non-CF bronchiectasis, etc.). If ever it turns out that you do not have CF, you should also look at the alternatives. Could you give us a list of the symptoms you have ? RDT.

I just wanted to add that probably other bacteria are in there ... RDT.

Chlorine or salty water do not kill ALL bacteria. My ENT told me that you find PA in pools, probably more in salty ones. If you still want a child to bathe in one, he/she could put ear plugs and nose plugs. Read on swimmers ear (it's PA in the ear and it is caught in a swimming pool). SPAs are a...

Gen H, Do you think these new drugs are good also for non CF bronchiectasis PA patients ? RDT.

GenH, WOW !!! You have given me hope :) Thank you for the links ! I will read it more in detail when I have a minute :) I have surfed SO much on the web and I have NEVER seen these !!! I have seen other stuff though : http://www.sciencemag.org/content/327/5968/1010.abstract...

Feeling extremely sorry for myself this pm ... Once and a while, I surf the net hoping that someone somewhere will find a cure for PA and it seems that NOTHING is on the way besides old antibios developped to neb and that do NOT cure PA, just reduce the number :( Does anyone know of something...

Hi everyone ! As some of you know, I am having trouble tolerating TOBI (tightness, wheezing, etc.). I thought of something this past week and I wanted to know what you all think :) FYI : I do Ventolin, Symbicort and Spiriva before my TOBI. I've never just nebbed 0,9 % Sodium Chloride (in my...

Automn, Thxs for the info ! You know what ? It seems I do tolerate TOBI after all :) Yes, I feel tightness (mostly when I wake up) and Ventolin helps a lot, but all in all my lungs are better and I breathe deeper. Less phlegm too. I'm sure my stats are better too. THANK GOD I tolerate it :)...

Just wanted to add (once again) : Better electric or microwave one ?

I'm using the PARI LC Plus Neb. If using a baby bottle sterilizer, shoud I take off the blue plastic thingy on the mouthpiece ?

Hello, I've read that many sterilize their nebs with Baby Bottle Sterilizers. Is it really efficient to kill germs? It seems really practical ! What are the best brands ? RDT.

Are you talking about Intercell ??? RDT.

I just wanted to add that I know there are a lot of questions, but I would really like if someone/anyone could answer some of them, doesn't have to be all of them ;-) RDT.

Hi everyone ! I'd like to start a new thread that discusses everything about nebbing antibios for PA : I'm wondering what kind of nebulizer/compressor you are all using with Coly-Mycin ... The same one than with TOBI ? Do you all have extra neb parts and how do you all wash/sterilize your...

Ok. After reading everything you guys/gals do, I feel not paranoid enough !!! I have one set of nebs that I wash after each use with soap and hot water. Rinse with hot tap water and leave it dry for 12 hours. I have never sterilized anything yet ... Is it really necessary ? I mean the air we...

That's what my respirologist suggested last time, Cayston + Coly. Thxs, RDT.

Hello, I'm new to the forum :) Female and 41 yo. I had to stop the TOBI Podhaler after 2½ months, because it seemed I wasn't tolerating it at all. I just started the regular TOBI (300 mg) and it seems after !one day! that I am not tolerating it either !!! I have tightness in my lungs and I'm...