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  1. K

    Difficulty with diagnosis

    Get the Ambry test done... it tests for all known mutations, deletions, etc. They'll even help you determine if your insurance will pay for the test.<br><a href="http://www.ambrygen.com/Cystic-Fibrosis.html">http://www.ambrygen.com/Cystic-Fibrosis.html</a><br>Also, if you go to the Newly...
  2. K

    Difficulty with diagnosis

    Get the Ambry test done... it tests for all known mutations, deletions, etc. They'll even help you determine if your insurance will pay for the test.<br><a href="http://www.ambrygen.com/Cystic-Fibrosis.html">http://www.ambrygen.com/Cystic-Fibrosis.html</a><br>Also, if you go to the Newly...
  3. K

    tough topic- portrayed life expectancy

    Lex - <div><br></div><div>In terms of CFF statistics, a person who has a lung transplant is considered to have 'died'.  (I'm so sorry to say that - it sounds so harsh!  I couldn't think of any other way to say it)  But at that point, available CF treatment has failed, so for statistical purposes...
  4. K

    tough topic- portrayed life expectancy

    Lex -<br>In terms of CFF statistics, a person who has a lung transplant is considered to have 'died'. (I'm so sorry to say that - it sounds so harsh! I couldn't think of any other way to say it) But at that point, available CF treatment has failed, so for statistical purposes it makes sense...
  5. K

    tough topic- portrayed life expectancy

    Lex -<br>In terms of CFF statistics, a person who has a lung transplant is considered to have 'died'. (I'm so sorry to say that - it sounds so harsh! I couldn't think of any other way to say it) But at that point, available CF treatment has failed, so for statistical purposes it makes sense...
  6. K

    Podcast with Jerry Cahill Please give me input!!!

    <P>Hey Jenn!</P> <P> </P> <P>Since Jerry Cahill's audience is CFers, maybe you could focus on your genetic mutuations... just in general about how not enough is known about the more uncommon mutations (disease causing or not), and you could explain your struggle to find out what yours might...
  7. K

    Podcast with Jerry Cahill Please give me input!!!

    <P>Hey Jenn!</P> <P></P> <P>Since Jerry Cahill's audience is CFers, maybe you could focus on your genetic mutuations... just in general about how not enough is known about the more uncommon mutations (disease causing or not), and you could explain your struggle to find out what yours might...
  8. K

    Podcast with Jerry Cahill Please give me input!!!

    <P><BR>Hey Jenn!</P> <P></P> <P>Since Jerry Cahill's audience is CFers, maybe you could focus on your genetic mutuations... just in general about how not enough is known about the more uncommon mutations (disease causing or not), and you could explain your struggle to find out what yours might...
  9. K

    So discouraged- UPDATE

    <P>Hi Jane,</P> <P> </P> <P>To me, tickly cough usually means something is dripping down from my sinuses that is causing the tickling.  I don't know much about Josh's history, but does he do sinus rinses?  Has he seen an ENT?  I did get sinus surgery to help prevent issues starting in my nose...
  10. K

    So discouraged- UPDATE

    <P>Hi Jane,</P> <P></P> <P>To me, tickly cough usually means something is dripping down from my sinuses that is causing the tickling. I don't know much about Josh's history, but does he do sinus rinses? Has he seen an ENT? I did get sinus surgery to help prevent issues starting in my nose and...
  11. K

    So discouraged- UPDATE

    <P><BR>Hi Jane,</P> <P></P> <P>To me, tickly cough usually means something is dripping down from my sinuses that is causing the tickling. I don't know much about Josh's history, but does he do sinus rinses? Has he seen an ENT? I did get sinus surgery to help prevent issues starting in my nose...
  12. K

    license plate

    My license plate (I'm in NJ) has a Rose on it, and says Organ Donors Save Lives. It's an extra fee every year, but the money goes to state Organ Donor Awareness programs. I love it! It's so appropriate w/ the Rose and Organ Donor theme <img src="i/expressions/face-icon-small-smile.gif"...
  13. K

    license plate

    My license plate (I'm in NJ) has a Rose on it, and says Organ Donors Save Lives. It's an extra fee every year, but the money goes to state Organ Donor Awareness programs. I love it! It's so appropriate w/ the Rose and Organ Donor theme <img src="i/expressions/face-icon-small-smile.gif"...
  14. K

    license plate

    My license plate (I'm in NJ) has a Rose on it, and says Organ Donors Save Lives. It's an extra fee every year, but the money goes to state Organ Donor Awareness programs. I love it! It's so appropriate w/ the Rose and Organ Donor theme <img src="i/expressions/face-icon-small-smile.gif"...
  15. K

    College Roommate....

    Hey Sawyer, I'm not sure what type of building you'll be living in, but see if there is a public restroom in it!! There is usually always a public bathroom on the first floor and it is hardly ever used since everyone has rooms within their apartments. This was a huge help to me - especially...
  16. K

    College Roommate....

    Hey Sawyer, I'm not sure what type of building you'll be living in, but see if there is a public restroom in it!! There is usually always a public bathroom on the first floor and it is hardly ever used since everyone has rooms within their apartments. This was a huge help to me - especially...
  17. K

    College Roommate....

    Hey Sawyer, <br /> <br />I'm not sure what type of building you'll be living in, but see if there is a public restroom in it!! There is usually always a public bathroom on the first floor and it is hardly ever used since everyone has rooms within their apartments. This was a huge help to me -...
  18. K

    everyone in my family smokes

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Havoc</b></i> Nobody said that smoking was good or indifferent to the lungs. What we did say is that they did show a modicum of respect by going outside and she always has the option to move out if it bothers her so much.</end...
  19. K

    everyone in my family smokes

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Havoc</b></i> Nobody said that smoking was good or indifferent to the lungs. What we did say is that they did show a modicum of respect by going outside and she always has the option to move out if it bothers her so much.</end...
  20. K

    everyone in my family smokes

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Havoc</b></i> <br /> <br />Nobody said that smoking was good or indifferent to the lungs. What we did say is that they did show a modicum of respect by going outside and she always has the option to move out if it bothers her so...
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