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Hey everyone.., I wanted to take a minute to update everyone on this site on how I'm doing 4 months post TX. Last week I had my latest check up at Columbia. It was pouring rain so I sprinted from the parking garage to the building. Then sprinted from building to building and eventually...

Hey Everyone, My wife just launched her website dedicated to raising awareness and funds for CF. Check out her website. She's organizing a road race to help in her cause. Check out the shop, too. Cool T-shirts. Thanks everyone. www.breatheforacause.com

How long post TX did your clubbing go away? I've always hated it and I heard that it goes away. Thanks.

Today was my 6 week check up and I also had a bronchoscopy with biopsy. My FEV1 is up to 96. Unfriggin' believable! I told the tech that my FEV hasn't been that high since I was 10 years old--and even then I doubt it. They expect my FEV1 to keep climbing well beyond 100. That will be a great...

A few days ago I found an envelope with all of my father's information on the road races he did in the 80's. My dad passed away 11 years ago when I was 21. But what's really cool is that now I have all his times, distances, etc. Now that I'm in this post TX world, I plan on doing a lot of...

Hey guys... Since my TX I no longer need my HillRom 104 Vest. I was going to give it to the hospital, but my lovely wife had the great idea of giving it someone who might really need one. So, we've decided to give it to someone who can't otherwise get one and really needs one. It helped me...

Ok, this may seem like a strange topic, but I have to say that ever since the TX, I feel somewhat disconnected from the CF community. Part of it is that the day to day issues surrounding a typical CFer don't apply to me anymore. Of course I remember very vividly what it was like and I feel like...

Hey guys....just had my first dry run -- that sucked. Just wondering how many dry runs you guys had?

Hi everyone... I'm very excited because I was just actively listed this past week. My LAS was about 38 and that places me at the top of the list for my height and blood type. So like I said....very exciting! So when the call comes, what did you guys do? I'm thinking I'd take a shower and on...

Just curious if fingernail clubbing is less severe or different post TX. If it's caused by lung problems, it should mean that the clubbing would go away. If it stays, it must be a different cause......right?

Just wondering if anyone is aware of a higher than normal divorce rate among TXers. The director of the TX center told me that there were recently 4 TXers whose spouse up and left right after TX. I guess once the person was feeling better, the other decided it was "OK" to leave. Anyone else...

Hey guys...I'm getting ready to take the plunge--one more day of testing and then they will decide whether to list me. I have this vision of being laid up post TX on my couch at home for months and months. I know after the TX I'll be in the hospital and a rehab center for a few weeks (if all...

I am currently going thru the testing and evaluation for tx. I'm at 26-24% FEV1. I feel "ok", but I have to say that I'm really excited to get healthy lungs. The thought of being able to express myself through physical activity and enjoy life like I used to is exciting. My CF is mostly in my...

Fat, Calories, and salt. Mmm......... <a target=_blank class=ftalternatingbarlinklarge href="http://shine.yahoo.com/channel/health/top-ten-worst-foods-of-2009-393616/">http://shine.yahoo.com/channel...-foods-of-2009-393616/</a>

Is anyone else out there excited? I'm glad that after 8 years of a man who obviously wasn't close to someone who could benefit from stem cell research, we've got an administration that sees the light. Thoughts?

Does anyone else have really bad breath due to the bacteria, abx, ect. that goes along with CF? I brush and use mouthwash, but it doesn't do the trick. My wife wants nothing to do with me <img src="i/expressions/face-icon-small-smile.gif" border="0"> Any ideas? Thanks!

I was wondering that since the FDA sucks, and the drug companies will no doubt drag out a cure to CF for at least 20 years, there's a decent chance that someday I will need a TX. So....... ......can you guys tell me a little about life expectancy and your quality of life today? I think it would...

Does anyone else respond light years better on Colistin than Tobramyocin? On my months on Tobra, I feel like total crap....months on Colistin, I feel great. I talked to my doc about it, and he told me that there's another option that will be available end of this year. Anyone know about...

So I've been wondering lately how valid FEV1 really is. Mine has been dropping the past couple years, stabilized, gone down, etc. But it seems like how I feel isn't represented in those numbers. For example, I recently went to the clinic and was measured at 25%. Two days later, I was running 100...

I just started using the hyper sal 7% after a 6 month break. I'm not constricted after doing it, so now I'm back on it. But I have a question. The first time I used the solution, it was amazing! I started off being fairly clear, but after only a few puffs, I was coughing up gunk that was...