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I would try to work a few years and earn enough credits to get ssdi. I learned that the hard way. You need 4 units x 5 years or so , per year of income and each unit is about $1100 in income. NOt sure how that will play out. Please double check with SS and Beth at the CFF It is best to plan a...

It seems that they were having minimal response on the VX770/809 combo and now they are saying good results.ANyone have input? Interim Data from Phase 2 Combination Study of VX-809 and KALYDECO™ (ivacaftor) Showed Significant Improvements in Lung Function (FEV1) in People with Cystic Fibrosis...

It seems that they were having minimal response on the VX770/809 combo and now they are saying good results. ANyone have input? Interim Data from Phase 2 Combination Study of VX-809 and KALYDECOtm (ivacaftor) Showed Significant Improvements in Lung Function (FEV1) in People with Cystic...

It seems that they were having minimal response on the VX770/809 combo and now they are saying good results. ANyone have input? Interim Data from Phase 2 Combination Study of VX-809 and KALYDECOtm (ivacaftor) Showed Significant Improvements in Lung Function (FEV1) in People with Cystic...

Well thats good maybe they'll keep going with it and get it out there sooner and continue with the vx661 I know they want a grand slam home run but this is a double and we'll take that, huh!

Well thats good maybe they'll keep going with it and get it out there sooner and continue with the vx661 I know they want a grand slam home run but this is a double and we'll take that, huh!

I have some extra pancrecarb and zenpep if someone needs PM me

I have some extra pancrecarb and zenpep if someone needs PM me

Interesting, I have long thought of how to make a port more user/ patient friendly. Good idea to get some market research from the specific end users. I have a similar small port in the Right upper chest, it is hard to access even for the nurses due to the size. It was placed with a small...

Interesting, I have long thought of how to make a port more user/ patient friendly. Good idea to get some market research from the specific end users. I have a similar small port in the Right upper chest, it is hard to access even for the nurses due to the size. It was placed with a small...

.....DDF508 did not respond to Kalydeco for the most part. Yes, there were a few individuals who may have had decreased sweat chloride, but the change in sweat chloride was NOT SUSTAINED through week 40 of the trial. Neither were the gains in fev1. I'm not saying don't try it, but don't be...

.....DDF508 did not respond to Kalydeco for the most part. Yes, there were a few individuals who may have had decreased sweat chloride, but the change in sweat chloride was NOT SUSTAINED through week 40 of the trial. Neither were the gains in fev1. I'm not saying don't try it, but don't be...

<strong>creation301</strong><img src="i/dominant/trans.gif" alt=" " width="1" height="8" border="0" />That makes all the difference at least your doc is pushing for you. I had the opposite experience and felt like I had to bring it up I had to push I had to beg. And then when I needed more help...

<strong>creation301</strong><img src="i/dominant/trans.gif" alt=" " width="1" height="8" border="0" />That makes all the difference at least your doc is pushing for you. I had the opposite experience and felt like I had to bring it up I had to push I had to beg. And then when I needed more help...

Here is the rub. I was able to get my cf doc to write a script but insurance says no, not G551. But my beef is how clinic and the CFF handles this. I know the research says that vx770 it doesnt do anything for 508's but it is how the attitude is we are not going help you get it to try. Their...

Here is the rub. I was able to get my cf doc to write a script but insurance says no, not G551. But my beef is how clinic and the CFF handles this. I know the research says that vx770 it doesnt do anything for 508's but it is how the attitude is we are not going help you get it to try. Their...

Hey Frank: What brand ofMicrosyn do you take or is that the brand. What do you think of its effectiveness. I will look at your last email you sent me. Rob

Hey Frank: What brand ofMicrosyn do you take or is that the brand. What do you think of its effectiveness. I will look at your last email you sent me. Rob

Yeah definately dont inhale H202! Where did you get that, I think you might be thinking IV H202. I have taken H202 IV many times, and some people find help - lots of research for other lung problems -but my own experience is mixed. chasingtruth Anyone that wants gluten free food at a discount...

Yeah definately dont inhale H202! Where did you get that, I think you might be thinking IV H202. I have taken H202 IV many times, and some people find help - lots of research for other lung problems -but my own experience is mixed. chasingtruth Anyone that wants gluten free food at a discount...