Hi Steve,
I think you missed my question I postedit was on newborn screening and what exactly is IRT level enzyme? I thought they tested for some of the most common mutations. His IRT level was normal and said they don't do any further testing.
I do have a son with with CF. Thanks.
Laurie
Thank you for your reply. No we are not going to get an amino done because it won't change anything, so we don't want to risk it. Darin never complains that his brother doesn't have it. Looks like we have to fine sons w/CF. Yes,it was hard to tell Darin at first that his brother didn't. He...
Thank you for your reply. No we are not going to get an amino done because it won't change anything, so we don't want to risk it. Darin never complains that his brother doesn't have it. Looks like we have to fine sons w/CF. Yes,it was hard to tell Darin at first that his brother didn't. He...
Thank you for your reply. No we are not going to get an amino done because it won't change anything, so we don't want to risk it. Darin never complains that his brother doesn't have it. Looks like we have to fine sons w/CF. Yes,it was hard to tell Darin at first that his brother didn't. He...
Thank you for your reply. No we are not going to get an amino done because it won't change anything, so we don't want to risk it. Darin never complains that his brother doesn't have it. Looks like we have to fine sons w/CF. Yes,it was hard to tell Darin at first that his brother didn't. He...
Thank you for your reply. No we are not going to get an amino done because it won't change anything, so we don't want to risk it. Darin never complains that his brother doesn't have it. Looks like we have to fine sons w/CF. Yes,it was hard to tell Darin at first that his brother didn't. He...
Wendy,
I love what you wrote. So beautifully said! Your very encouraging. Even though we planned our third it's encouraging to see that parents try again for moe children. You're right about worrying, but I let it up to God and pray my worries to him. He has a plan for my family and that...
Wendy,
I love what you wrote. So beautifully said! Your very encouraging. Even though we planned our third it's encouraging to see that parents try again for moe children. You're right about worrying, but I let it up to God and pray my worries to him. He has a plan for my family and that...
Wendy,
I love what you wrote. So beautifully said! Your very encouraging. Even though we planned our third it's encouraging to see that parents try again for moe children. You're right about worrying, but I let it up to God and pray my worries to him. He has a plan for my family and that...
Wendy,
I love what you wrote. So beautifully said! Your very encouraging. Even though we planned our third it's encouraging to see that parents try again for moe children. You're right about worrying, but I let it up to God and pray my worries to him. He has a plan for my family and that...
Wendy,
I love what you wrote. So beautifully said! Your very encouraging. Even though we planned our third it's encouraging to see that parents try again for moe children. You're right about worrying, but I let it up to God and pray my worries to him. He has a plan for my family and that...
Hi Sarah,
I think everyone gave great advice! My 10 yr.old has CF. He does well. It took 7 yrs. to decide to have another. We did and our son is CF free. We have always wanted 3 children. It is a tough and scary choice. Our son with Cf is a blessing to us, he made us better people. He...
Hi Sarah,
I think everyone gave great advice! My 10 yr.old has CF. He does well. It took 7 yrs. to decide to have another. We did and our son is CF free. We have always wanted 3 children. It is a tough and scary choice. Our son with Cf is a blessing to us, he made us better people. He...
Hi Sarah,
I think everyone gave great advice! My 10 yr.old has CF. He does well. It took 7 yrs. to decide to have another. We did and our son is CF free. We have always wanted 3 children. It is a tough and scary choice. Our son with Cf is a blessing to us, he made us better people. He...
Hi Sarah,
I think everyone gave great advice! My 10 yr.old has CF. He does well. It took 7 yrs. to decide to have another. We did and our son is CF free. We have always wanted 3 children. It is a tough and scary choice. Our son with Cf is a blessing to us, he made us better people. He...
Hi Sarah,
I think everyone gave great advice! My 10 yr.old has CF. He does well. It took 7 yrs. to decide to have another. We did and our son is CF free. We have always wanted 3 children. It is a tough and scary choice. Our son with Cf is a blessing to us, he made us better people. He...
Genetics testing
HI Steve,
My son who is almost 3 had newborn screening done. I thought they checked for the most common mutations. They said they checked the IRT level enzyme and it was normal. What is IRT and is that what they all do in newborn screening. He isn't sick,no funny...
Aspiemom,
Could my son who is 10 be able to try the tea? Sun thru Tues. he has had coughinh fits at night. He slept propped up and I gave him his treatments. He usually has these fits for 2-3 hrs. I guess he would be too young for nyquil? The pretzels is a good idea. I didn't realize that...
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