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That is a good question. At first they kept telling me when Cale turned 2 that he would be fitted for the vest. He turned 2 and they told me we had to wait until he was 3. Now he is 3 and we go back Dec 5 where I will insist on a trial for the vest. He doesn't let me do therpay on him too well...

Wow Allie, I think that was well put.

Thanks Julie! I feel so strongly about this! I love my family and my Mother in law so so very much! But they know what they are doing to themselves, and then I look at the young and innocent, like Cale and so many others here and I instantly get mad at them for smoking! When I became pregnant to...

I appreciate your input, and Julie for some reason I never thought about my will! <img src="i/expressions/face-icon-small-confused.gif" border="0"> To answer supermanfan: If there was no match to first a CF patient, and then someone else with a genetic illness, then yes, of course, the lungs...

I am starting to take a real interest in becoming an organ donor myself and promoting organ donation. I have a question though... Do you know if I am an organ donor, can I specify that my lungs go to say any CF patient and NOT someone such as a smoker with self inflicted bad lungs? I called a...

Here's a thought... Instead of paying to have him 'sterilized'...(offensive), maybe you could pay for the invitro type procedure that would help reduce the risk of a CF conception. And possibly reduce the risk of making your daughter mad at you. This is considering they are even carriers...

I just want to say that I hope you are NOT using CF as an excuse for your daughter not to marry this guy. That is wrong. It sounds to me you are more worried about your assets and your daughters financial well being. And if my in-laws were to imply that we should be sterile as so we don't...

of beer! <img src="i/expressions/beer.gif" border="0"> lobster

coffee! latte or cappucino?

I am curious how/why they determined that his liver was elevated? Are there other sypmtoms that initiated the testing? They first discovered that in my son while testing him for something else. At the time they had ruled CF out with a false-negative sweat test at a regular hospital. But they...

*TRUSTWORTHY* is the key word there!! <img src="i/expressions/face-icon-small-happy.gif" border="0"> Before putting it into something like a Certificate at a bank, I'd check to make sure you can withdraw it with no penalty for a medical emergency. I worked in banking for 7 years and that is...

handgliding coleslaw or potato salad?

tropical sun

Home by Thanksgiving would be great! I'll send a prayer your way! BTW, I loved your How We Met story. Don't you love that first eye contact, and feeling all fuzzy about it? Oh to go back for a day... Feel better soon!<img src="i/expressions/rose.gif" border="0">

sneakers!!!!!!! Especially with my beat up feet!! yoga or pilates?

gross magic

Jen I wish I had the magic words for you too. Keeping up with your posts and everything you've gone/are going through in the last couple of months, I'm not surprised you're overwhelmed! But in order for you to keep the best you, you have to take care of yourself first! Your family will...

Cale also has an enlarged liver and his levels are elevated. They put him on Actigol medicine which has taken his levels down, but I haven't seen any sypmtoms or signs that it changed anything.

Lynsey, Before Cale was diagnosed with CF they tested him for Celiac. It is an intolerance to Gluten which is found in SOOO many foods, wheat products, flour, etc. To test him for that they put him under and took an endoscopy (biopsy) of his intestines to see if there was damage to the little...

mini. hopefully they are frosted favorite holiday candy... chocolate covered cherries or candy cane?