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Awesome! Go lungs go! See how high you can go!

One of the wisest doctors I ever saw (from 2005-2008) put what he referred to as a "hemoptysis plan" in place after seeing me the first day and me telling him my history of being a bleeder. While I never had had a bleed that required an emergency procedure, he wanted me, and more importantly my...

One of the wisest doctors I ever saw (from 2005-2008) put what he referred to as a "hemoptysis plan" in place after seeing me the first day and me telling him my history of being a bleeder. While I never had had a bleed that required an emergency procedure, he wanted me, and more importantly my...

Hi Nikole, Sorry for the delay. How was your daughter's mutations found? Does she have a positive sweat test? You could test for the specific mutations she has in the other two children. For the other two children to have a totally different mutation than the two that she carries they would need...

Great site & thanks for the shout out to this site. I'm sure Randy is very excited to have this place for his memory to live on.

Clock. still. ticking. here. With one we feel we 'have no excuse' not to send him to the best school possible. While we live in one of the best school districts in the nation, it is still a public school doing very traditional efforts so independent school it is for us. My hope is that I love...

rosesixtyfive, just to be clear Sam is not on HTS if he is inhaling anything below 3-9%. It's just regular saline. Most of us have been inhaling .9% (the salinity of our tears FYI) for our whole lives. This could be the best thing for me. As others have mentioned induced coughing may not be the...

rosesixtyfive, just to be clear Sam is not on HTS if he is inhaling anything below 3-9%. It's just regular saline. Most of us have been inhaling .9% (the salinity of our tears FYI) for our whole lives. This could be the best thing for me. As others have mentioned induced coughing may not be the...

My son hasn't had a CT scan yet. Just curious what your daughter's xray was like. My son's shows no changes. I don't think his doctor would recommend us to CT scan unless we were having more problems. He hasn't cultured PA and is unusual because he passes the sweat test. So what do they plan to...

My son hasn't had a CT scan yet. Just curious what your daughter's xray was like. My son's shows no changes. I don't think his doctor would recommend us to CT scan unless we were having more problems. He hasn't cultured PA and is unusual because he passes the sweat test. So what do they plan to...

Great perspective Amy. I have no further comment just wanted to share those two perspectives. You helped to jog my memory that the Vertex person did mention the fact that they can't recommend it off label because it is illegal and at the time it was fresh in my head because you had explained...

Great perspective Amy. I have no further comment just wanted to share those two perspectives. You helped to jog my memory that the Vertex person did mention the fact that they can't recommend it off label because it is illegal and at the time it was fresh in my head because you had explained...

Has anyone considered contacting Vertex about this? They are very nice I just hesitate to do it myself because I don't want to take their time away from drug development. I'm just saying it may help to get their perspective before a lot of time is put into this. I personally always have to...

Has anyone considered contacting Vertex about this? They are very nice I just hesitate to do it myself because I don't want to take their time away from drug development. I'm just saying it may help to get their perspective before a lot of time is put into this. I personally always have to...

What does CCP stand for? Critical Control Point? What phase is CCP? I was in Ph. IIB and Ph. III and Open Label Extension

What does CCP stand for? Critical Control Point? What phase is CCP? I was in Ph. IIB and Ph. III and Open Label Extension

Thanks Autumn! Ticket sales are down. Please spread the word about this fun event!

Thanks Autumn! Ticket sales are down. Please spread the word about this fun event!

Buy your tickets here - <a href="http://www.southburywomensclub.org/">http://www.southburywomensclub.org/</a> <img src="http://i1070.photobucket.com/albums/u493/laurenbrenneman/IndulgeforaCure2012.jpg">

Buy your tickets here - <a href="http://www.southburywomensclub.org/">http://www.southburywomensclub.org/</a> <img src="http://i1070.photobucket.com/albums/u493/laurenbrenneman/IndulgeforaCure2012.jpg">