Search results

prayers for you Tom to be in the moment and enjoy these final days if possible. There will be time to grieve. I can't even imagine but this is what I will pray for. And for comfort for Micah. Take care of you too!

prayers for you Tom to be in the moment and enjoy these final days if possible. There will be time to grieve. I can't even imagine but this is what I will pray for. And for comfort for Micah. Take care of you too!

thanks again for Amy! You sure know how to make a girl feel appreciated :-) I feel so lucky and blessed to have access to this wonderful drug. Becky, I would go for it but I would try to find care for your child. Unfortunately when I was participating at least they wouldn't reimburse for...

thanks again for Amy! You sure know how to make a girl feel appreciated :-) I feel so lucky and blessed to have access to this wonderful drug. Becky, I would go for it but I would try to find care for your child. Unfortunately when I was participating at least they wouldn't reimburse for...

What a thoughtful question C!

What a thoughtful question C!

welcome to the forum kate! And congrats on your new baby! Could you tell us a bit about your adoption process if you are comfortable starting your own thread there are many of us who would love to hear your story!

JoAnn, Don't the directions say to take it 30 minutes AFTER (not with as you wrote) a fatty meal? And yes, this is how I attempt to take it because there was a lot of trial and error to find out what was the method to get the best absorption of the medicine. With regards to timing, no I don't...

JoAnn, Don't the directions say to take it 30 minutes AFTER (not with as you wrote) a fatty meal? And yes, this is how I attempt to take it because there was a lot of trial and error to find out what was the method to get the best absorption of the medicine. With regards to timing, no I don't...

I am also a Miele owner. I did my research back in 2002 and found it was the best. I love not only how well it works but all the attachments and how quiet it is. Not even the dog is scared when I use it. Mine was $700. 10 years old and running strong! The only other one I considered was the...

I am also a Miele owner. I did my research back in 2002 and found it was the best. I love not only how well it works but all the attachments and how quiet it is. Not even the dog is scared when I use it. Mine was $700. 10 years old and running strong! The only other one I considered was the...

Your messages really touched me. I want to thank you for your appreciation. It shows me that you understand completely what a lot of work and a sacrifice for me (aka mom) and my family to more than "allow" but to "support" me to leave for a day and a half every 8 wks the last few years was. The...

Your messages really touched me. I want to thank you for your appreciation. It shows me that you understand completely what a lot of work and a sacrifice for me (aka mom) and my family to more than "allow" but to "support" me to leave for a day and a half every 8 wks the last few years was. The...

I voted for you. I hope you win but I didn't get to read your entry which I was hoping it would show. I'm sure it is great!

I voted for you. I hope you win but I didn't get to read your entry which I was hoping it would show. I'm sure it is great!

I took Isaac to get his hearing tested when he was just shy of two. There were no ear pieces. He sat in a box similar to our pft box and the audiologist could speak to him from outside the box. Now that I think about it he may have had headphones on...don't recall but I think the sounds were...

I did not experience sore throat. Isaac is not taking the drug yet. He goes to clinic next week though and is incidently scheduled for his first pfts which was a prerequisite for me to be willing to sign him up. Since he has regular sweat chloride result at 3 months and again at 2 years that...

I did not experience sore throat. Isaac is not taking the drug yet. He goes to clinic next week though and is incidently scheduled for his first pfts which was a prerequisite for me to be willing to sign him up. Since he has regular sweat chloride result at 3 months and again at 2 years that...

You won't know for sure until you test. Considering she is this healthy she likely has some functionaility in her CFTR if she does even in fact have cf. I bring this up because in a case like her's, it's not conclusive to do just a sweat test but should also seek a genetic sequencing test. The...

You won't know for sure until you test. Considering she is this healthy she likely has some functionaility in her CFTR if she does even in fact have cf. I bring this up because in a case like her's, it's not conclusive to do just a sweat test but should also seek a genetic sequencing test. The...