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  1. L

    How Were You / Your Loved One Diagnosed?

    I love telling this story -- When I was a newborn, I could eat more than my mom. My mom, a pediatrician, was observant and suspicious right off the bat. So she knew the symptoms of CF, and one warm day she picked me up and kissed me on the forehead - and tasted the excessive salt on her lips...
  2. L

    How Were You / Your Loved One Diagnosed?

    I love telling this story -- When I was a newborn, I could eat more than my mom. My mom, a pediatrician, was observant and suspicious right off the bat. So she knew the symptoms of CF, and one warm day she picked me up and kissed me on the forehead - and tasted the excessive salt on her lips...
  3. L

    How Were You / Your Loved One Diagnosed?

    I love telling this story -- When I was a newborn, I could eat more than my mom. My mom, a pediatrician, was observant and suspicious right off the bat. So she knew the symptoms of CF, and one warm day she picked me up and kissed me on the forehead - and tasted the excessive salt on her lips...
  4. L

    why live?

    p.s. i have def. felt that frusteration though
  5. L

    why live?

    p.s. i have def. felt that frusteration though
  6. L

    why live?

    p.s. i have def. felt that frusteration though
  7. L

    why live?

    eh hem... ok, to a certain few, can we support eachother instead of attacking someone with the same diesease, but who we don't really know about at all otherwise, who's looking for help ? but, what I really want to say is that there's been a lot of really great things said, and in addition...
  8. L

    why live?

    eh hem... ok, to a certain few, can we support eachother instead of attacking someone with the same diesease, but who we don't really know about at all otherwise, who's looking for help ? but, what I really want to say is that there's been a lot of really great things said, and in addition...
  9. L

    why live?

    eh hem... ok, to a certain few, can we support eachother instead of attacking someone with the same diesease, but who we don't really know about at all otherwise, who's looking for help ? but, what I really want to say is that there's been a lot of really great things said, and in addition...
  10. L

    Does anyone have any tips on taking their enzymes?

    I'm sooo sneaky when I take them, even around my friends...though not around my family. It's weird because my friends are all aware of my CF too & amazing. I carry them in a little mints container in my purse and sometimes when I'm out I'll only take as many as I feel safe sneaking (I'm...
  11. L

    Does anyone have any tips on taking their enzymes?

    I'm sooo sneaky when I take them, even around my friends...though not around my family. It's weird because my friends are all aware of my CF too & amazing. I carry them in a little mints container in my purse and sometimes when I'm out I'll only take as many as I feel safe sneaking (I'm...
  12. L

    Does anyone have any tips on taking their enzymes?

    I'm sooo sneaky when I take them, even around my friends...though not around my family. It's weird because my friends are all aware of my CF too & amazing. I carry them in a little mints container in my purse and sometimes when I'm out I'll only take as many as I feel safe sneaking (I'm...
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