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  1. J

    Loss of taste

    Yes, IV meds have a tendency to affect things like that, but the oral would be the first thing I'd look at as a cause. I just can't remember which IV causes metallic taste, but I don't think it's Tobra because I'm on that one every time and we alternate second drugs and I don't get bad taste...
  2. J

    quelle mutuelle vous pouvez me conseiller?

    Parlez-vous français? I don't.
  3. J

    Does anyone take Zenpep?

    You can't get non-FDA drugs. Zenpep, the New Enzyme on the Block - <a target=_blank class=ftalternatingbarlinklarge href="http://www.cffatboy.com/2010/03/zenpep-the-new-enzyme-on-the-block/">http://www.cffatboy.com/2010/0...w-enzyme-on-the-block/</a>
  4. J

    Does anyone take Zenpep?

    You can't get non-FDA drugs. Zenpep, the New Enzyme on the Block - <a target=_blank class=ftalternatingbarlinklarge href="http://www.cffatboy.com/2010/03/zenpep-the-new-enzyme-on-the-block/">http://www.cffatboy.com/2010/0...w-enzyme-on-the-block/</a>
  5. J

    Does anyone take Zenpep?

    You can't get non-FDA drugs. <br />Zenpep, the New Enzyme on the Block - <a target=_blank class=ftalternatingbarlinklarge href="http://www.cffatboy.com/2010/03/zenpep-the-new-enzyme-on-the-block/">http://www.cffatboy.com/2010/0...w-enzyme-on-the-block/</a>
  6. J

    Concerned. Husband is coughing more than usual.

    He should know what to do by now and listen to you if you say his cough is worse. It would behoove him to listen to you, as my wife can predict issues at least a month out with an increased cough or change in my cough smell. If he's the "I don't like doctors type" at this point, tell him to man...
  7. J

    Concerned. Husband is coughing more than usual.

    He should know what to do by now and listen to you if you say his cough is worse. It would behoove him to listen to you, as my wife can predict issues at least a month out with an increased cough or change in my cough smell. If he's the "I don't like doctors type" at this point, tell him to man...
  8. J

    Concerned. Husband is coughing more than usual.

    He should know what to do by now and listen to you if you say his cough is worse. It would behoove him to listen to you, as my wife can predict issues at least a month out with an increased cough or change in my cough smell. If he's the "I don't like doctors type" at this point, tell him to man...
  9. J

    Running!

    Have you tried blogging about your running? 8 miles is impressive, especially if you have a moderate mutation or worse. Keep it up! You might be able to show up runsickboyrun.com if you can keep up that distance. ;-)
  10. J

    Running!

    Have you tried blogging about your running? 8 miles is impressive, especially if you have a moderate mutation or worse. Keep it up! You might be able to show up runsickboyrun.com if you can keep up that distance. ;-)
  11. J

    Running!

    Have you tried blogging about your running? 8 miles is impressive, especially if you have a moderate mutation or worse. Keep it up! You might be able to show up runsickboyrun.com if you can keep up that distance. ;-)
  12. J

    shakey hands?

    I've got super-strong hands, but they get shaky with low blood sugar or certain meds, so I wouldn't rule either of those out unless we're talking about 30 minutes after a meal to eliminate low blood sugar as a cause. I wouldn't worry about it if it isn't bothering him and the doctors don't see...
  13. J

    shakey hands?

    I've got super-strong hands, but they get shaky with low blood sugar or certain meds, so I wouldn't rule either of those out unless we're talking about 30 minutes after a meal to eliminate low blood sugar as a cause. I wouldn't worry about it if it isn't bothering him and the doctors don't see...
  14. J

    shakey hands?

    I've got super-strong hands, but they get shaky with low blood sugar or certain meds, so I wouldn't rule either of those out unless we're talking about 30 minutes after a meal to eliminate low blood sugar as a cause. I wouldn't worry about it if it isn't bothering him and the doctors don't see...
  15. J

    Frustrated and so very confused...

    I was an obvious CFer as a newborn, so I can't relate other than hearing these stories before and going through a time with my wife now where we're not sure what is ailing her with allergy-like symptoms. I hate unknowns in my life. You need to have a full panel genetic test. Sweat tests aren't...
  16. J

    Frustrated and so very confused...

    I was an obvious CFer as a newborn, so I can't relate other than hearing these stories before and going through a time with my wife now where we're not sure what is ailing her with allergy-like symptoms. I hate unknowns in my life. You need to have a full panel genetic test. Sweat tests aren't...
  17. J

    Frustrated and so very confused...

    I was an obvious CFer as a newborn, so I can't relate other than hearing these stories before and going through a time with my wife now where we're not sure what is ailing her with allergy-like symptoms. I hate unknowns in my life. <br /> <br />You need to have a full panel genetic test. Sweat...
  18. J

    keeping up with treatments

    I couldn't be compliant if it wasn't for my eFlow/Trio/Altera for nebs. They cut my 4 hours of treatments down to less than 1 hour. Why you NEED an eFlow a.k.a. Trio and Altera - <a target=_blank class=ftalternatingbarlinklarge...
  19. J

    keeping up with treatments

    I couldn't be compliant if it wasn't for my eFlow/Trio/Altera for nebs. They cut my 4 hours of treatments down to less than 1 hour. Why you NEED an eFlow a.k.a. Trio and Altera - <a target=_blank class=ftalternatingbarlinklarge...
  20. J

    keeping up with treatments

    I couldn't be compliant if it wasn't for my eFlow/Trio/Altera for nebs. They cut my 4 hours of treatments down to less than 1 hour. <br /> Why you NEED an eFlow a.k.a. Trio and Altera - <a target=_blank class=ftalternatingbarlinklarge...
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