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    Do you know where the "BEST" cf center is?

    Do you know where the "BEST Not sure what area you're from but,Vanderbilt in Nashville has a great facility..period. We have had our daughter there for non-related to cf probs...we have been going to the cf clinic for a year this month..excellent..staff is very caring & understanding....they...
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    Do you know where the "BEST" cf center is?

    Do you know where the "BEST Not sure what area you're from but,Vanderbilt in Nashville has a great facility..period. We have had our daughter there for non-related to cf probs...we have been going to the cf clinic for a year this month..excellent..staff is very caring & understanding....they...
  3. S

    Do you know where the "BEST" cf center is?

    Do you know where the "BEST Not sure what area you're from but,Vanderbilt in Nashville has a great facility..period. We have had our daughter there for non-related to cf probs...we have been going to the cf clinic for a year this month..excellent..staff is very caring & understanding....they...
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    2 Questions for parents

    I agree with everything said by previous replies..our docs are fine with me adjusting Hannah's enzymes..I just pay close attention to fatty, oily, strong odor stools..you can adjust by 1/4 to 1/2 of an enzyme....you may want to discuss this with your docs first...also, when Hannah has a cold she...
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    2 Questions for parents

    I agree with everything said by previous replies..our docs are fine with me adjusting Hannah's enzymes..I just pay close attention to fatty, oily, strong odor stools..you can adjust by 1/4 to 1/2 of an enzyme....you may want to discuss this with your docs first...also, when Hannah has a cold she...
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    2 Questions for parents

    I agree with everything said by previous replies..our docs are fine with me adjusting Hannah's enzymes..I just pay close attention to fatty, oily, strong odor stools..you can adjust by 1/4 to 1/2 of an enzyme....you may want to discuss this with your docs first...also, when Hannah has a cold she...
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    The vest

    I am currently trying to get my daughter a vest..i have been in contact with a company "RespirTech" & they have a vest called "InCourage System". I heard about it on this site. I got ahold of the company & have been dealing with two gentlemen named Jim Bedard & Jim Mares. They have both been...
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    The vest

    I am currently trying to get my daughter a vest..i have been in contact with a company "RespirTech" & they have a vest called "InCourage System". I heard about it on this site. I got ahold of the company & have been dealing with two gentlemen named Jim Bedard & Jim Mares. They have both been...
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    The vest

    I am currently trying to get my daughter a vest..i have been in contact with a company "RespirTech" & they have a vest called "InCourage System". I heard about it on this site. I got ahold of the company & have been dealing with two gentlemen named Jim Bedard & Jim Mares. They have both been...
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    Nestle drink?

    I saw something on this the other day...I will check around & see if I can come up with it..I think the info may have come from the Cystic Fibrosis Services Pharmacy. You may want to contact them....(800)541-4959 or www.CFServicesPharmacy.com. When they send my daughters enzymes they always...
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    Nestle drink?

    I saw something on this the other day...I will check around & see if I can come up with it..I think the info may have come from the Cystic Fibrosis Services Pharmacy. You may want to contact them....(800)541-4959 or www.CFServicesPharmacy.com. When they send my daughters enzymes they always...
  12. S

    Nestle drink?

    I saw something on this the other day...I will check around & see if I can come up with it..I think the info may have come from the Cystic Fibrosis Services Pharmacy. You may want to contact them....(800)541-4959 or www.CFServicesPharmacy.com. When they send my daughters enzymes they always...
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    newly diagnosed

    Montana, I love the "Holland" story..it really is the truth..bittersweet...I wouldn't trade what I have with either of my children for anything...I plan to send this to my family & friends..Thanks!!!
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    Intro & questions????

    Hope you & your family are doing well! Heard you are home now..update me when you have some time..the commitee meeting is Tues..do you think someone from your family will be there?
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    Intro & questions????

    Sherry I just wanted you to know that I've put you & your family on prayers lists with everyone we know & they are passing it to people they know. I am so sorry that Briceton has been having such a hard time! It is the hardest thing seeing your baby with all those tubes and cords attached..I...
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    Intro & questions????

    Hey Sherry, I am so glad to see you on this site..You have met my mom, Sharon, @ the cf committee meetings..she said you may call..I recognized your son's name...please call or email me..sassytennessee@hotmail.com...Hannah is 17 mos now so I can share alot of things that I just learned..hope...
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    Expecting Parents of Child with CF

    My daughter, 17 mos old now, was diagnosed @ 7 mos of age. We have had our ups & downs. I felt like I was hitting wall after wall..I couldn't get support from anyone..just keep fighting..My family was great, but our community was hard to get support from, @ first. My husband had to switch...
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    food and cipro

    My daughter was just diagnosed with cf Oct '05. She is only 17 mos old, now. My suggestion is to eat oatmeal made w/o milk, pancakes & waffles along with fruit. You can buy everything pre-packaged, so it will not be an inconvenience to cook every morning. The fruit will help you digest your...
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    TOBI @ 16 Months

    Sorry about the symbols, they weren't suppose to be there!? I also wanted to tell you that we sing during Tobi...and our nurse told us to tap the medicine cup to make sure you get full benefit of using all the medicine...
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    TOBI @ 16 Months

    My daughter is 14 mos old & last week was diagnosed with PA, 1st time. We started Tobi and Cipro. We use a mask b<img src="i/expressions/face-icon-small-happy.gif" border="0"><img src="i/expressions/rose.gif" border="0">/c we feel she benefits more from it. When it comes to how we handle it...
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