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Nikole, I was dx at age 37 and I'm now 47. I knew it was in my family since my nephew passed away over 20 years ago with CF. I went for genetic testing as well as my husband. He's not a carrier and my 2 girls 9 & 5 have absolutely no symptoms of CF however they will both be carriers. I have...

I'm going to join tonight to chat for the first time Lori 47 dx age 37 - R117 & D508 - with 2 kids no CF

Radies I do have coverage through the government called OHIP however I also have benefits through the company I work for. It covers long term, short term disability a drug plan etc. but pay extra for the enhanced plan. Any stay in a hospital is fully covered - but. A plan gets a semi or private...

Well first of all thank you for all of your responses. I appreciate your comments and advice. I haven't been able to really focus on my health since I'm in the situation of being in a sandwich era of my life. I have elderly parents and 2 small children. I also have a career etc. I do have a CF...

Marcijo - You have the same gene combination that I do. I was diagnosed at 37 and I'm now 47. Have had lung infections, sinus infections etc and haven't had to take meds for my digestion at all. I'm now starting to have issues with my digestion and this last Xmas I had the worst lung infection...

I was diagnosed later in life - 37. I'm now 47 and only my very close friends that I work with know (three in fact) that I have CF. I have a mild form - D508 and R117 gene combination. I have had lung infections but never had to be hospitalized and a bowel blockage after I had my appendix...

Hi Jenny I haven't heard of this drug. I'll google it. What is it used for? Thank you for your message. Lori

I haven't heard of Kalydeco before. I have had bronchitis and pneumonia since I was a child. I was extremely underweight as a child to young adult. I had a bowel blockage 4 years ago and I believe it was linked to my appendectomy surgery. I've done research and when CF patients have...

Kristen You are the first person who I've found with the same gene combination. I was diagnosed at 38. I'm now 47. I don't take enzymes or meds unless I have a lung infection. I have had a blockage in my bowel 5 years ago. Lung function is good...dropped slightly 2 years ago by 7 percent but...

I recently noticed the wrinkled hand thing. After a regular shower, not unusually long my hands were just awful. I don't know why I just started to notice this. I also constantly wipe my wine glass and switch to a new one if it's too cloudy! I'm a 47 year old female - diagnosed at 38 - with...

I'm a 47 year old female that was diagnosed with CF at age 38. Anyone with same gene combo?? How are you doing?

I have Df508 and R117. There are so many combinations. The DF508 is the severe gene and the second of mine R117 is considered mild. How is your daughter doing? I'm a 47 year old female and was diagnosed at 38.