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    cystic fibrosis and scoliosis

    You know my daughter is 15 and she has CF and Scoliosis and both back dr.'s have never said it was related to CF. So far she just has a back brace to see if that will straighten her hump out to alleviate the pain. It is working some when she will wear the thing. Luckily summer is coming so...
  2. A

    cystic fibrosis and scoliosis

    You know my daughter is 15 and she has CF and Scoliosis and both back dr.'s have never said it was related to CF. So far she just has a back brace to see if that will straighten her hump out to alleviate the pain. It is working some when she will wear the thing. Luckily summer is coming so...
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    Pancreatitis and The Vest

    I always made my son use the acapella. That was the only thing he could do. Now when he wasnt having a pancreatitis attack he would use the vest. But he got to the point he was in pain 24/7 so the vest was out of the question. And of course doing the PFT's were very hard on him. Trying to...
  4. A

    Pancreatitis and The Vest

    I always made my son use the acapella. That was the only thing he could do. Now when he wasnt having a pancreatitis attack he would use the vest. But he got to the point he was in pain 24/7 so the vest was out of the question. And of course doing the PFT's were very hard on him. Trying to...
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    looking for parents with CF children to talk with

    Hi I have a 21 yr. old son with CF and he had a Total Pancretectomy/Islet Cell Transplant after suffering with Pancreatitis for years and also a 15 yr. old daughter with CF. Lot of battles to get them to do their meds. Will email if interested. aug19dw@aol.com. Donna, VA.
  6. A

    looking for parents with CF children to talk with

    Hi I have a 21 yr. old son with CF and he had a Total Pancretectomy/Islet Cell Transplant after suffering with Pancreatitis for years and also a 15 yr. old daughter with CF. Lot of battles to get them to do their meds. Will email if interested. aug19dw@aol.com. Donna, VA.
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    Newly diagnosed

    is anyone in southeast va
  8. A

    Newly diagnosed

    is anyone in southeast va
  9. A

    Newly diagnosed

    is anyone in southeast va
  10. A

    Newly diagnosed

    HI I AM NEW TO THE SITE. BOTH OF MY CHILDREN HAVE JUST BEEN DIAGNOSED IN THE LAST 2 MONTHS. THIS HAS BEEN DEVASTATING TO ALL OF US. MY SON IS 16 AND MY DAUGHTER IS 10. MY SON HAS BEEN HAVING STOMACHE PROBLEMS FOR ABOUT 3-4 YEARS NOW AND THEY DEVELOPED INTO PANCREATITIS LAST SUMMER. WE HAVE...
  11. A

    Newly diagnosed

    HI I AM NEW TO THE SITE. BOTH OF MY CHILDREN HAVE JUST BEEN DIAGNOSED IN THE LAST 2 MONTHS. THIS HAS BEEN DEVASTATING TO ALL OF US. MY SON IS 16 AND MY DAUGHTER IS 10. MY SON HAS BEEN HAVING STOMACHE PROBLEMS FOR ABOUT 3-4 YEARS NOW AND THEY DEVELOPED INTO PANCREATITIS LAST SUMMER. WE HAVE...
  12. A

    Newly diagnosed

    HI I AM NEW TO THE SITE. BOTH OF MY CHILDREN HAVE JUST BEEN DIAGNOSED IN THE LAST 2 MONTHS. THIS HAS BEEN DEVASTATING TO ALL OF US. MY SON IS 16 AND MY DAUGHTER IS 10. MY SON HAS BEEN HAVING STOMACHE PROBLEMS FOR ABOUT 3-4 YEARS NOW AND THEY DEVELOPED INTO PANCREATITIS LAST SUMMER. WE HAVE...
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