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I have heard of several cfers not needing hospital visits for several years....thats why some dont get diagnosed till late in life. I wont say one way or the other what will happen because no one knows. Some go down slowly from the start. Some dont have problems at all then start going down...

I tried to email you the other day. I dont know if you got it or not. You can email me at akberrie@hotmail.com

I also wanted to say I know of two cfers that were allergic to zithromax so it made them alot worse than doing any tiny bit of good. Its just good to remember like all medication some people have very good results, moderate, to no results or very bad results. It varies person to person.

As are alot of medications...they were made for one purpose and found to do alot more good for another purpose. Everyone has their own opinions which is wonderful. While I agree that a person shouldnt be on antibotics for too long because you can become reisistant, I really do think zithromax...

Since you said you havent heard any one say good things about it I will. I am one that has found it helping me. No I didnt notice a difference right away. But it was like it kept the small infections at bay and kept me from having as many small infections grow into a big infection which would...

Can I ask who is doing her surgery? And is it at the santa rosa hospital or somewhere else? I am having sinus surgery done on the 23rd (unless it gets changed) and will be in the hospital starting tomorrow for two weeks. If you want to swing by my hospital room I'll be happy to chat with...

That is so weird. Whats up with the administrators? Is there a person on here Coll knows that might be mad at her for some odd reason and also is an admin? I dont think the ones that are admin tell anyone if they are. Can she come on as annon?

Plus Julie always signs in and when she doesnt she always signs it Julie wife of Mark w/cf. I had a person pose as me before so its not hard at all.

I was never taught to measure my sputum. I just would notice if i was coughing up more per cough and color was darker and consistancy. Still that way. My docs still dont ask how much I cough up just if its more than usual...a little more, medium or alot more is what i usually tell them. I mean...

I had to have sinus surgery because my sinuses were so infected it was causing me to have lung infections as well....infected drainage going to the lungs. I was fine for a few years and doing really well...then they got really infected again with more polyps, we tried alternatives...like you...

The only advice I can give you is keep asking the doc questions, make him tell you things. If he gives a vague answer tell him thats not good enough. The other thing is insist that a certified surgeon or radiologist (yes they do PICCs) do the iv even if you have to wait a few days. Explain that...

No problem. Eventually the shock will wear off and your family will get into a routine and it wont seem as bad as it does now. Sure scary still for the unknown and things that happen for the first time...But you will know how to handle it and know you have each other. I am very happy I am 22 and...

Yes its progressive but also unpredictable....meaning there is no way to tell how fast or slow it will get worse. Unpredictable for puberty as well...both male and female cfers can have late puberty...another one of those that some have it late and some dont....Its also a factor of if late...

Yeah you better stay loyal to the pedis side or we will be hearing about you and your stories. man that mouth of yours ...whew....just kidding. i know you like the peds cus of that reason...plus its hard to start loving/liking others so fast when they (peds) have taken care of you for soooo long...

Hey now dont scare her from the adult side there good here too...lol

I just want to say keep fighting with medicaid and chip. Also you should be able to get back on chip since you can prove you never got that letter to renew with a simple letter or something from the post office of when addresses changed, that you have this new address. I was able to get on...

I guess its one of those things we cant git rid of. I have tried those gas X pills...surpisingly it helps whent he problem is gas related. Have you ever asked for a fat test or whatever it is to see if you need enzymes and how strong they should be?

Well he can be. He knows what he is talking about when it comes to cars most of the time. He just gets to cheap and you never get anything being as cheap as he is. But he can be a good bargainer.

I was on albuterol since the get go when I was diagnosed in 1984. I think alot of doctors do this as a regulat regimine. Alot of cf is being prevenative. Some things seem unnecessary to me when you dont need it, like some antibotics when your not sick. Also starting a daily rutine now will help...

When i was looking into getting a car for myself I was on a tight budget too...about $5,000...The idea at the time was get it used and then upgrade later after i had a job and stuf...that didnt work out but i learned somethings. If you go to a car dealership and look at the used cars they have...