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<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Anomie</b></i> The 661 seems to be doing as good as 770 did and I know that vertex is really excited about it. 809 however got the axe and clinical trials for it are being terminated.</end quote> The press release from cff yesterday...

Like the PP mentioned there is a renowned salt room in Orlando. This is different than nebbing hyp sal, and not to be replaced with hyp sal. The purpose of salt rooms isn't just the salt, its the minerals also. There was HALO in nyc but that has sinced closed. The only thing similar I've found...

Like the PP mentioned there is a renowned salt room in Orlando. This is different than nebbing hyp sal, and not to be replaced with hyp sal. The purpose of salt rooms isn't just the salt, its the minerals also. There was HALO in nyc but that has sinced closed. The only thing similar I've found...

I don't know about central FL, but I've heard in the Cf community that Miami Children's is great, and they have an adult connection.

I don't know about central FL, but I've heard in the Cf community that Miami Children's is great, and they have an adult connection.

Its probably from hemmerhoids. Have the OB check it out. Painful, but rarely anything to worry about. Def check it out.

For my first pregnancy I had an OB who had experience with Cf moms, but was not high risk. My Cf clinic had referred their cases to her, so during my pregnancy we all worked closely together. For my 2nd pregnancy, that dear OB had since retired, so I needed to find someone else. My Cf clinic was...

1 hr 15 mins on a good day. 3 hrs on a bad day. Beth Israel, NYC baby Wanted to add- I went to JH years ago for a consultation. I was so impressed. Wonderful hospital and facilities. And obviously, cutting edge.

1 hr 15 mins on a good day. 3 hrs on a bad day. Beth Israel, NYC baby Wanted to add- I went to JH years ago for a consultation. I was so impressed. Wonderful hospital and facilities. And obviously, cutting edge.

SO happy you made it to 37 wks! Enjoy that little bundle...the newborn stage is the most magical :) Soak it in, mama. As far as your lung, yes you've been through the ringer but you WILL bounce back from this. Remember that all women that give birth, without Cf, have a reduction in their lung...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>kross10911</b></i> I was just put on it yesterday, its a cat. B I am reluctant to add yet another med to my body and being 8 weeks pregnant. But i do know if i cant keep myself healthy then im not doing any good to my baby.</end...

Wanted to add, a wonderful resource is infantrisk.org. They have a hotline which is sort of like poison control of sorts...for Breastfeeding and meds. I called them during my last round of IVs regarding my prednisone. (prednisone happens to be a L3 level med for BF, anything 30 mgs or under for...

Hello, I BF my daughter till she was 11 months old. I would have gone longer but I was doing alot of in and out of the hospital at the time (had some sudden non cf related surgeries). I loved nursing her, but by the time she was 11 months I could see she wasn't that interested anymore. That goes...

For those of you who've been diagnosed later in life (over 30, say) how did you cope with it? What could I do to support someone who is Dx later in life? Its hard for me to think of the emotions that a person would go through. I was dx at 1.5 yrs old. Its all I've ever known. What about when...

For those of you who've been diagnosed later in life (over 30, say) how did you cope with it? What could I do to support someone who is Dx later in life? Its hard for me to think of the emotions that a person would go through. I was dx at 1.5 yrs old. Its all I've ever known. What about when...

Well done docu. I wish I could sit down all my loved ones and watch it with them-I think they'd understand what Cf is much better.I really related to the end when Kirstie says she spent so much time trying to convince people around her that she really was sick-she forgot how sick she actually...

Well done docu. I wish I could sit down all my loved ones and watch it with them-I think they'd understand what Cf is much better.I really related to the end when Kirstie says she spent so much time trying to convince people around her that she really was sick-she forgot how sick she actually...

personally, I'd go to whatever legit cf center is closest, and show up at the ER. pitch a fit and you'll rise up the ladder from staff er doc, to pulmonologist on call, to cf doc on call.

personally, I'd go to whatever legit cf center is closest, and show up at the ER. pitch a fit and you'll rise up the ladder from staff er doc, to pulmonologist on call, to cf doc on call.

It is a category B med. I took it with both pregnancies, however I was very conservative and opted to delay taking it till my 2nd trimester. It was no problem stopping it for those weeks the first pregnancy. However the 2nd pregnancy, my lungs missed my pulmozyme alot. So whatever you do, know...