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  1. C

    Dr. Needed for newly diagnosed patient.

    Go to www.cff.org then click on the bar at the top that says "treatments" Under that bar go to "care center network" At the bottom go to "review care center data". You will find the FEV1 for that center compared to the national average and the national goal. Go to the center that has an FEV1...
  2. C

    Dr. Needed for newly diagnosed patient.

    There are about 200 CF centers in the country. Patients followed in the top 10 centers live about 7 years longer than those followed in the rest. To find out which center is the best in your area go to www.cff.org then treatment then care center network then review care center data. Find the...
  3. C

    Persistent MRSA

    Had MRSA for 8 years requiring IV antibiotics every 3 months for several years. Now GONE and no IVs in 6 years. Here's how: septra every day for 1 month alternating with doxycyline daily for 1 month. This regimen for last 6 years. In other words ALWAYS on oral antibiotics. Lung function went...
  4. C

    Surgical Scars

    I have a scar like that from meconium ileus but I don't care what other people think.
  5. C

    Surgical Scars

    I have a scar like that from meconium ileus but I don't care what other people think.
  6. C

    Surgical Scars

    I have a scar like that from meconium ileus but I don't care what other people think.
  7. C

    Surgical Scars

    I have a scar like that from meconium ileus but I don't care what other people think.
  8. C

    Surgical Scars

    I have a scar like that from meconium ileus but I don't care what other people think.
  9. C

    How much do u weigh? :-)

    I am 12 and weigh 95 lb. and I am 5 ft 1 in. tall.
  10. C

    How much do u weigh? :-)

    I am 12 and weigh 95 lb. and I am 5 ft 1 in. tall.
  11. C

    How much do u weigh? :-)

    I am 12 and weigh 95 lb. and I am 5 ft 1 in. tall.
  12. C

    How much do u weigh? :-)

    I am 12 and weigh 95 lb. and I am 5 ft 1 in. tall.
  13. C

    How much do u weigh? :-)

    I am 12 and weigh 95 lb. and I am 5 ft 1 in. tall.
  14. C

    Who has to use a vest?

    I have been doing the vest for 5 years. It's still pretty annoying but you'll get used to doing it everyday.
  15. C

    Who has to use a vest?

    I have been doing the vest for 5 years. It's still pretty annoying but you'll get used to doing it everyday.
  16. C

    Who has to use a vest?

    I have been doing the vest for 5 years. It's still pretty annoying but you'll get used to doing it everyday.
  17. C

    Who has to use a vest?

    I have been doing the vest for 5 years. It's still pretty annoying but you'll get used to doing it everyday.
  18. C

    Who has to use a vest?

    I have been doing the vest for 5 years. It's still pretty annoying but you'll get used to doing it everyday.
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