Usually participants are not allowed to discuss experiences in public while being in a trial... Here is ablog bysomeone on VX-661 which is really encouraging:
http://www.cfgirlseyeofthetiger.com/blog/2012/03/20/Halfway-through-.aspx
Usually participants are not allowed to discuss experiences in public while being in a trial... Here is ablog bysomeone on VX-661 which is really encouraging:
http://www.cfgirlseyeofthetiger.com/blog/2012/03/20/Halfway-through-.aspx
My son has R347P / DF508 and he is completely pancreatic sufficient.
Jenica: thanks for sharing this. I am also still hoping. But R117H has also a gating problem (reduced channel open time) so that this would be different from other class 4 mutations.
My son has R347P / DF508 and he is completely pancreatic sufficient.
Jenica: thanks for sharing this. I am also still hoping. But R117H has also a gating problem (reduced channel open time) so that this would be different from other class 4 mutations.
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