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    Confused !!

    Hello,I had my son diagnosed via blood tests, when he was 3 weeks old.However only recently did we have the sweat test done, and he came up at 66.In this country (New Zealand) anything over 60 is positive.I have talked to many people and am also confused, overseas they say above 70 is positive...
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    help?

    Hello,It depends where you are in your pregnancy, but a amnio is a way of determining whether the child has CF.If you are only around week 10 -12 then a test called a Chorionic Villus Sampling can be performed and the results are available within 7 - 10 days of the test completion.I hope this...
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    MY LITTLE GIRL.

    Hi Emma,My little boy is only 9 months old, however we have a real battle with the physio as well.I have talked to many other parents who suggested going and selecting together a special dvd or video and only playing it during phsyio time.It has really worked a treat and has made it a lot...
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    Has anyone heard about this?

    Hi Diane,Yes it is a new drug compound that was discovered that significantly reduces excess mucus.So far the test results were pretty outstanding.The tests were performed on asthmatic mice, but still a important step as I don't believe anything had been as effective as this had been.If you want...
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    Why have the child?

    I am the mother of a 8 month old boy with CF.I have to say that I wouldn't change anything at all, he is the most precious thing to my partner and I.I have learn't that CF isn't the end of the world if you don't make it.I was very upset about the death issue for quite a while after he was born...
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