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My son was tested in January 2007 with the CF Amplified and was negative. There is still some speculation by Dr's that he has some type of atypical cf and I was wondering if there are more mutations found now and if it would be beneficial to do the testing again.

My friends daughter seems to always be hungry, although taking in tons of calories a day. They are waiting to have more testing done, as she was in the high 30's on her sweat test. Is it normal for a 2 year old to be consuming an estimated 1800 calories a day, hardly gaining weight, and never...

My friends daughter seems to always be hungry, although taking in tons of calories a day. They are waiting to have more testing done, as she was in the high 30's on her sweat test. Is it normal for a 2 year old to be consuming an estimated 1800 calories a day, hardly gaining weight, and never...

My friends daughter seems to always be hungry, although taking in tons of calories a day. They are waiting to have more testing done, as she was in the high 30's on her sweat test. Is it normal for a 2 year old to be consuming an estimated 1800 calories a day, hardly gaining weight, and never...

purplemartin, It sounds as though you are referring to my son, although I don't remember posting our situation on any other forums. If it is my son that you are referring to, hopefully I can clear up some confusion and not cause anymore anger or frustration to any parents out there with CF...

purplemartin, It sounds as though you are referring to my son, although I don't remember posting our situation on any other forums. If it is my son that you are referring to, hopefully I can clear up some confusion and not cause anymore anger or frustration to any parents out there with CF...

purplemartin, It sounds as though you are referring to my son, although I don't remember posting our situation on any other forums. If it is my son that you are referring to, hopefully I can clear up some confusion and not cause anymore anger or frustration to any parents out there with CF...

My son has problems with granulation tissue, and a lot of the time it can be treated with the silver nitrate. As long they get it on the granulation tissue it isn't a problem. My son is 21 months, and the button seems to bother him more without treating with silver nitrate than with treating...

My son has problems with granulation tissue, and a lot of the time it can be treated with the silver nitrate. As long they get it on the granulation tissue it isn't a problem. My son is 21 months, and the button seems to bother him more without treating with silver nitrate than with treating...

My son has problems with granulation tissue, and a lot of the time it can be treated with the silver nitrate. As long they get it on the granulation tissue it isn't a problem. My son is 21 months, and the button seems to bother him more without treating with silver nitrate than with treating...

Alyssa, his first sweat test was done at our local hospital, done on 1-5-06. That result was a 38. He was 9 months old at that test. The second sweat test was done at Sacred Heart Childrens Hospital and was done 3-30-06 when he was 12 months old. The result was a 12. We had a genetic...

Alyssa, his first sweat test was done at our local hospital, done on 1-5-06. That result was a 38. He was 9 months old at that test. The second sweat test was done at Sacred Heart Childrens Hospital and was done 3-30-06 when he was 12 months old. The result was a 12. We had a genetic...

Alyssa, his first sweat test was done at our local hospital, done on 1-5-06. That result was a 38. He was 9 months old at that test. The second sweat test was done at Sacred Heart Childrens Hospital and was done 3-30-06 when he was 12 months old. The result was a 12. We had a genetic...

Our GI doc is at Childrens in Seattle, as we have been hospitalized there a few times. We are in Eastern Wash, but like Childrens in Seattle much better than Spokane. The CF doc in Spokane is fairly certain with having the neg sweat tests that he doesn't have it, but we want to make sure. Our...

Our GI doc is at Childrens in Seattle, as we have been hospitalized there a few times. We are in Eastern Wash, but like Childrens in Seattle much better than Spokane. The CF doc in Spokane is fairly certain with having the neg sweat tests that he doesn't have it, but we want to make sure. Our...

Our GI doc is at Childrens in Seattle, as we have been hospitalized there a few times. We are in Eastern Wash, but like Childrens in Seattle much better than Spokane. The CF doc in Spokane is fairly certain with having the neg sweat tests that he doesn't have it, but we want to make sure. Our...

Alyssa, May I ask which dr(s) you see at Children's in Seattle? I am in Wash., and my son has a couple of Drs that we go to Seattle to see. Also, do I just ask for the full genetic test panel? I e-mailed ambry, and they said that they test for 99% of the 1500 mutations, and I am interested...

Alyssa, May I ask which dr(s) you see at Children's in Seattle? I am in Wash., and my son has a couple of Drs that we go to Seattle to see. Also, do I just ask for the full genetic test panel? I e-mailed ambry, and they said that they test for 99% of the 1500 mutations, and I am interested...

Alyssa, May I ask which dr(s) you see at Children's in Seattle? I am in Wash., and my son has a couple of Drs that we go to Seattle to see. Also, do I just ask for the full genetic test panel? I e-mailed ambry, and they said that they test for 99% of the 1500 mutations, and I am interested...

My son has all of the classic CF symptoms, but has had a negative sweat test and has been tested for 32 mutations. He has been on pancreatic enzymes, which have helped a lot, then when we took him off he was in the hospital due to a bowel obstruction. He is a FTT kid, is fed thru a g-tube at...