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Very good news, now the babies who have a disease can get help right away!!!!!!

Does anybody else or their children with cf get SSI or have they applied for it or do they even qualify?????

I'm a lawyer of 25 years doing family law....I believe the judge would take into account your unique situation but you may need to educate him (thru your child's doctor) on the medical issues of your children.. best advice: get a good local family lawyer

We found out that our baby has cf through newborn screening when he was 9 days old, but we just had his sweat test done last week (he is now 5 weeks old). The people at Children's told me that normal (no cf) is 39 or 40. Connor's numbers were 113 and 109. So thats very high. Does the higher the...

Sorry, I forgot to answer you before. We are from the Mukwonago/ Waukesha area, but we just moved to Dousman last month!!! I am very pleased to hear that you were happy with the cf team in Milwakee!!! They all are very nice people, and I can tell that they really care about my Connor. I learned...

How do toddlers act when you have to do all of these things with them and give them all of these meds because I have a 2 1/2 year old ( W/ no cf) and she is very busy, she hardly sits still when I brush her hair? ? ? Are kids ( baby's , toddlers) in the hospital or really sick a lot or how does...

Thank you thank you thank you all for being so helpful to me, it got me through the longest weekend of my life. We went to our very first appointment at Children's Hospital today. I feel a lot better knowing more info and talking to the people that will help us keep our baby as healthy and as...

Thank you so much for caring, it really means A LOT to us right now. It is really hard to absorb all of this information, but I know deep down that we'll all be okay! I do have another child, she is 2 1/2, her name is Kaylin and she does not have cf. She is a very smart and busy girl, but just...

Hello, I am new to the site, and I just found out yesterday that my 10 day old baby has cf. And I guess that I just have lots of questions. It seems to me that he's pretty sick, but I don't even want to say that. He isn't eating at all as much as he should, and when he does eat he throws up...