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my understanding of the newborn screen is that it only checks for 25 mutations? When our daughter was diagnosed, she was flagged on the newborn screen with one and then they sent it to a different clinic for a more thorough test (this one tested for 60?)...didn't find anything on that and so...

my understanding of the newborn screen is that it only checks for 25 mutations? When our daughter was diagnosed, she was flagged on the newborn screen with one and then they sent it to a different clinic for a more thorough test (this one tested for 60?)...didn't find anything on that and so...

my understanding of the newborn screen is that it only checks for 25 mutations? When our daughter was diagnosed, she was flagged on the newborn screen with one and then they sent it to a different clinic for a more thorough test (this one tested for 60?)...didn't find anything on that and so...

my understanding of the newborn screen is that it only checks for 25 mutations? When our daughter was diagnosed, she was flagged on the newborn screen with one and then they sent it to a different clinic for a more thorough test (this one tested for 60?)...didn't find anything on that and so...

my understanding of the newborn screen is that it only checks for 25 mutations? When our daughter was diagnosed, she was flagged on the newborn screen with one and then they sent it to a different clinic for a more thorough test (this one tested for 60?)...didn't find anything on that and so...

I completely understand what you are going through. We had a similar experience where they found one mutation via newborn screening. I had the experience of knowing pretty well two people who had both died due to complications with CF in their early 20's so I was really scared. It's such a...

I completely understand what you are going through. We had a similar experience where they found one mutation via newborn screening. I had the experience of knowing pretty well two people who had both died due to complications with CF in their early 20's so I was really scared. It's such a...

I completely understand what you are going through. We had a similar experience where they found one mutation via newborn screening. I had the experience of knowing pretty well two people who had both died due to complications with CF in their early 20's so I was really scared. It's such a...

I completely understand what you are going through. We had a similar experience where they found one mutation via newborn screening. I had the experience of knowing pretty well two people who had both died due to complications with CF in their early 20's so I was really scared. It's such a...

I completely understand what you are going through. We had a similar experience where they found one mutation via newborn screening. I had the experience of knowing pretty well two people who had both died due to complications with CF in their early 20's so I was really scared. It's such a...

Doesn't everyone eventually get a vest? That's kind of how my daughters team makes it sound. She's 2 1/2 and we've talked briefly about getting the vest but we don't really want that bill yet...

Doesn't everyone eventually get a vest? That's kind of how my daughters team makes it sound. She's 2 1/2 and we've talked briefly about getting the vest but we don't really want that bill yet...

Doesn't everyone eventually get a vest? That's kind of how my daughters team makes it sound. She's 2 1/2 and we've talked briefly about getting the vest but we don't really want that bill yet...

Doesn't everyone eventually get a vest? That's kind of how my daughters team makes it sound. She's 2 1/2 and we've talked briefly about getting the vest but we don't really want that bill yet...

Doesn't everyone eventually get a vest? That's kind of how my daughters team makes it sound. She's 2 1/2 and we've talked briefly about getting the vest but we don't really want that bill yet...

Do you all go through a CF center for care? My daughter is 10 months old and we don't go to a "center" but we are at Mayo which used to be accredited (?) but I'm just wondering what your opinions are on this? She's been healthy thus far (diagnosed via newborn screen and subsequent sweat tests...

Do you all go through a CF center for care? My daughter is 10 months old and we don't go to a "center" but we are at Mayo which used to be accredited (?) but I'm just wondering what your opinions are on this? She's been healthy thus far (diagnosed via newborn screen and subsequent sweat tests...

Do you all go through a CF center for care? My daughter is 10 months old and we don't go to a "center" but we are at Mayo which used to be accredited (?) but I'm just wondering what your opinions are on this? She's been healthy thus far (diagnosed via newborn screen and subsequent sweat tests...

So I think I'm finally coming out of my "denial" about my 9 month old daughter having CF...so I thought I would introduce myself and my situation. We found out she had CF after a newborn screen showed one mutation, then went through 2 sweat tests and genetic testing to determine the other...

So I think I'm finally coming out of my "denial" about my 9 month old daughter having CF...so I thought I would introduce myself and my situation. We found out she had CF after a newborn screen showed one mutation, then went through 2 sweat tests and genetic testing to determine the other...