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  1. F

    Vitamin E supplementation levels

    Yes, we keep tabs on his Vit E levels. We never tested him pre-supplementation, but while on 200IUs his level was just over normal at 24.7. While on 1200IUs it went up only one point to 25.8! You would have thought it would have shot up more, but it didn't. While on the enzymes and at...
  2. F

    Vitamin E supplementation levels

    Thank you. These are the levels I was expecting to hear about. You see, in order to keep my son's Vit E-related sensory issues under control, I have to give him 2400IUs d-alpha tocopherol and 1200mg d-gamma tocopherol daily (yes, you read that correctly). I spread it out in 3 doses through...
  3. F

    Vitamin E supplementation levels

    Thank you. These are the levels I was expecting to hear about. You see, in order to keep my son's Vit E-related sensory issues under control, I have to give him 2400IUs d-alpha tocopherol and 1200mg d-gamma tocopherol daily (yes, you read that correctly). I spread it out in 3 doses through...
  4. F

    Vitamin E supplementation levels

    Thank you. These are the levels I was expecting to hear about. You see, in order to keep my son's Vit E-related sensory issues under control, I have to give him 2400IUs d-alpha tocopherol and 1200mg d-gamma tocopherol daily (yes, you read that correctly). I spread it out in 3 doses through...
  5. F

    Vitamin E supplementation levels

    Thank you. These are the levels I was expecting to hear about. You see, in order to keep my son's Vit E-related sensory issues under control, I have to give him 2400IUs d-alpha tocopherol and 1200mg d-gamma tocopherol daily (yes, you read that correctly). I spread it out in 3 doses through...
  6. F

    Vitamin E supplementation levels

    Thank you. These are the levels I was expecting to hear about. You see, in order to keep my son's Vit E-related sensory issues under control, I have to give him 2400IUs d-alpha tocopherol and 1200mg d-gamma tocopherol daily (yes, you read that correctly). I spread it out in 3 doses through...
  7. F

    Vitamin E supplementation levels

    Thank you. These are the levels I was expecting to hear about. You see, in order to keep my son's Vit E-related sensory issues under control, I have to give him 2400IUs d-alpha tocopherol and 1200mg d-gamma tocopherol daily (yes, you read that correctly). I spread it out in 3 doses through...
  8. F

    Anyone with single mutation w/CF symptoms?

    No, we have not been to a CF center. It was the GI doctor who ordered the CF Gene test. I never dreamed that being a carrier could mean anything other than consideration for future family planning, but he said no, that he has 15-20 other patients who have only one mutation with malabsorption...
  9. F

    Anyone with single mutation w/CF symptoms?

    No, we have not been to a CF center. It was the GI doctor who ordered the CF Gene test. I never dreamed that being a carrier could mean anything other than consideration for future family planning, but he said no, that he has 15-20 other patients who have only one mutation with malabsorption...
  10. F

    Anyone with single mutation w/CF symptoms?

    No, we have not been to a CF center. It was the GI doctor who ordered the CF Gene test. I never dreamed that being a carrier could mean anything other than consideration for future family planning, but he said no, that he has 15-20 other patients who have only one mutation with malabsorption...
  11. F

    Anyone with single mutation w/CF symptoms?

    No, we have not been to a CF center. It was the GI doctor who ordered the CF Gene test. I never dreamed that being a carrier could mean anything other than consideration for future family planning, but he said no, that he has 15-20 other patients who have only one mutation with malabsorption...
  12. F

    Anyone with single mutation w/CF symptoms?

    No, we have not been to a CF center. It was the GI doctor who ordered the CF Gene test. I never dreamed that being a carrier could mean anything other than consideration for future family planning, but he said no, that he has 15-20 other patients who have only one mutation with malabsorption...
  13. F

    Anyone with single mutation w/CF symptoms?

    No, we have not been to a CF center. It was the GI doctor who ordered the CF Gene test. I never dreamed that being a carrier could mean anything other than consideration for future family planning, but he said no, that he has 15-20 other patients who have only one mutation with malabsorption...
  14. F

    Vitamin E supplementation levels

    Hi - I know that people with CF need to supplement with fat-soluble vitamins. What is the recommended dosage of Vitamin E? I'm sure this is sometimes done on a case by case basis, but I've read that a child my son's size (18kg or 40 lbs) would need around 100-200IUs per day to correct Vit E...
  15. F

    Vitamin E supplementation levels

    Hi - I know that people with CF need to supplement with fat-soluble vitamins. What is the recommended dosage of Vitamin E? I'm sure this is sometimes done on a case by case basis, but I've read that a child my son's size (18kg or 40 lbs) would need around 100-200IUs per day to correct Vit E...
  16. F

    Vitamin E supplementation levels

    Hi - I know that people with CF need to supplement with fat-soluble vitamins. What is the recommended dosage of Vitamin E? I'm sure this is sometimes done on a case by case basis, but I've read that a child my son's size (18kg or 40 lbs) would need around 100-200IUs per day to correct Vit E...
  17. F

    Vitamin E supplementation levels

    Hi - I know that people with CF need to supplement with fat-soluble vitamins. What is the recommended dosage of Vitamin E? I'm sure this is sometimes done on a case by case basis, but I've read that a child my son's size (18kg or 40 lbs) would need around 100-200IUs per day to correct Vit E...
  18. F

    Vitamin E supplementation levels

    Hi - I know that people with CF need to supplement with fat-soluble vitamins. What is the recommended dosage of Vitamin E? I'm sure this is sometimes done on a case by case basis, but I've read that a child my son's size (18kg or 40 lbs) would need around 100-200IUs per day to correct Vit E...
  19. F

    Vitamin E supplementation levels

    Hi - I know that people with CF need to supplement with fat-soluble vitamins. What is the recommended dosage of Vitamin E? I'm sure this is sometimes done on a case by case basis, but I've read that a child my son's size (18kg or 40 lbs) would need around 100-200IUs per day to correct Vit E...
  20. F

    Anyone with single mutation w/CF symptoms?

    You are welcome! If you find out something, please post.
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