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Thanks for sharing...great story...good to hear yours are doing so well. All information shared offers hope and answers. Thanks.

Have you had your gall bladder removed? Also, when did you experience problems with your liver. Has the liver gotten progressively worse or better? Were your bile stones in the liver? When did you start using ursodol? Thanks for the information...this part of CF is too important to ignore.

Have you had your gall bladder removed? Also, when did you experience problems with your liver. Has the liver gotten progressively worse or better? Were your bile stones in the liver? When did you start using ursodol? Thanks for the information...this part of CF is too important to ignore.

Have you had your gall bladder removed? Also, when did you experience problems with your liver. Has the liver gotten progressively worse or better? Were your bile stones in the liver? When did you start using ursodol? Thanks for the information...this part of CF is too important to ignore.

You can GET people to that age...but without a proper digestive system...it won't matter. We are talking QUALITY of life as well. And how do you know the CF foundation doesn't see it this way? I cannot believe they do not have a DIGESTIVE research team, that would be completely insane...it is...

You can GET people to that age...but without a proper digestive system...it won't matter. We are talking QUALITY of life as well. And how do you know the CF foundation doesn't see it this way? I cannot believe they do not have a DIGESTIVE research team, that would be completely insane...it is...

You can GET people to that age...but without a proper digestive system...it won't matter. We are talking QUALITY of life as well. And how do you know the CF foundation doesn't see it this way? I cannot believe they do not have a DIGESTIVE research team, that would be completely insane...it is...

I understand that way of thinking...but it should not negate research into the digestive aspect. Think about this: we solve the lung issues...we increase the lifespans of people with CF....but now we get into our thirties and forties and fifties and sixties.....doesn't the CFF think that a...

I understand that way of thinking...but it should not negate research into the digestive aspect. Think about this: we solve the lung issues...we increase the lifespans of people with CF....but now we get into our thirties and forties and fifties and sixties.....doesn't the CFF think that a...

I understand that way of thinking...but it should not negate research into the digestive aspect. Think about this: we solve the lung issues...we increase the lifespans of people with CF....but now we get into our thirties and forties and fifties and sixties.....doesn't the CFF think that a...

So with that thinking...we should only focus money and therapies on "lung cancer" and not pancreatic cancer? After all, it would be more profitable....What we should be focusing on the disease as a whole? If we are correcting the defect and/or chloride channel...would that not effect ALL CF...

So with that thinking...we should only focus money and therapies on "lung cancer" and not pancreatic cancer? After all, it would be more profitable....What we should be focusing on the disease as a whole? If we are correcting the defect and/or chloride channel...would that not effect ALL CF...

So with that thinking...we should only focus money and therapies on "lung cancer" and not pancreatic cancer? After all, it would be more profitable....What we should be focusing on the disease as a whole? If we are correcting the defect and/or chloride channel...would that not effect ALL CF...

Do any of these potential therapies affect the DIGESTIVE aspect of this disease? http://www.cff.org/research/DrugDevelopmentPipeline/ Understand that the focus is on the lungs, but there is something out there called CF Liver Disease....there must be SOME focus on that.

Do any of these potential therapies affect the DIGESTIVE aspect of this disease? http://www.cff.org/research/DrugDevelopmentPipeline/ Understand that the focus is on the lungs, but there is something out there called CF Liver Disease....there must be SOME focus on that.

Do any of these potential therapies affect the DIGESTIVE aspect of this disease? http://www.cff.org/research/DrugDevelopmentPipeline/ Understand that the focus is on the lungs, but there is something out there called CF Liver Disease....there must be SOME focus on that.

Two daughters with CF. I've heard about the enzyme therapies...do they correct a problem or do they supply the body what it needs to absorbo nutrients.?

Two daughters with CF. I've heard about the enzyme therapies...do they correct a problem or do they supply the body what it needs to absorbo nutrients.?

Two daughters with CF. I've heard about the enzyme therapies...do they correct a problem or do they supply the body what it needs to absorbo nutrients.?

Two daughter with CF. I've heard about the enzyme therapies...do they correct a problem or do they supply the body what it needs to absorbo nutrients.?