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Happy Monday!! I just started home IV's over the weekend. I went into the hospital on Friday to get my PICC line and get started in the hospital. I am new to this hospital and DR so we agreed to start in patient and leave over the weekend. My PICC placement went smooth for the first time...

Happy Sunday!! I know that most of the medicines we get with CF have Sun Warnings on them. Maybe I have just been lucky because I have never experienced any issues until now. Last weekend, I was driving in the car and got sun burnt, but it looks more like hives than sun burn. It is located...

Happy Monday!! I posted the one earlier about collistin and hives, but I could not get anything to post in the body!! I just recently started collistin again. A few months I started it with a few other meds and it was summer-so I thought the sun was causing the rash. I am completely covered...

Happy Tuesday!! I am moving to Pittsburgh. I need to get a new DR. Any recomendations?

Happy Wednesday!! Three separate questions<img src="i/expressions/face-icon-small-smile.gif" border="0"> First, how is the GSH inhaled? I find the tablets to purchase, but not anything inhaled. Can I just put it in the hypertonic saline? Sorry if that sounds dumb. I looked through all the...

Happy Sunday!!! I am so frustrated. I have had the worst year ever. I just want answers. I will give everyone a quick overview of the past year. Everything started getting complicated last summer. My breathing test started to decline with no explanation, base line FEV1 in 80's. After 6...

Happy Wednesday!! I was diagnosed with CFRD after taking steroid to treat aspergillus. So once I stopped the steroids and took out my NuvaRing my number dropped to pre-diabetes numbers mostly 130-180 post meals. I am not currently on any insulin-short or long lasting. Is there anyone who...

Happy Tuesday!! I was reading the post from a couple years ago about oregano oil. It seems like some people are doing the pills and some are nebulizing it. For those who are using the pills....are you getting results. For those of you who are nebulizing....you you just putting the...

Happy Monday!! My name is Pepsi. I am new to the site. I LOVE it. The post on the supplement was great. I have been researching supplements for Aspergillus. I came across the Pau D'Arco which is used to treat Aspergillus, but also treatment for Cancer, HIV, AIDS, and alot of other diseases...

Happy Sunday!! I went to the emergency room on Thursday evening in extreme pain under my left rib cage. I was double overed in pain under my rib cage, middle back, and shoulder. I had my galbladder removed a few years ago so I knew it wasnt that, but the pain was similar very sharp in the...