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  1. C

    mutation info

    Would any body have info on this mutation Ivs8 5t. Two of my children have two copies of this IVS8 5t/Ivs8 5t. At first they called it atypical Cf. But since have been put in the full Cf category. When we first started going to the clinic they said it would present mildly with no pancreas...
  2. C

    mutation info

    Would any body have info on this mutation Ivs8 5t. Two of my children have two copies of this IVS8 5t/Ivs8 5t. At first they called it atypical Cf. But since have been put in the full Cf category. When we first started going to the clinic they said it would present mildly with no pancreas...
  3. C

    mutation info

    Would any body have info on this mutation Ivs8 5t. Two of my children have two copies of this IVS8 5t/Ivs8 5t. At first they called it atypical Cf. But since have been put in the full Cf category. When we first started going to the clinic they said it would present mildly with no pancreas...
  4. C

    mutation info

    Would any body have info on this mutation Ivs8 5t. Two of my children have two copies of this IVS8 5t/Ivs8 5t. At first they called it atypical Cf. But since have been put in the full Cf category. When we first started going to the clinic they said it would present mildly with no pancreas...
  5. C

    mutation info

    Would any body have info on this mutation Ivs8 5t. Two of my children have two copies of this IVS8 5t/Ivs8 5t. At first they called it atypical Cf. But since have been put in the full Cf category. When we first started going to the clinic they said it would present mildly with no pancreas...
  6. C

    mutation info

    Would any body have info on this mutation Ivs8 5t. Two of my children have two copies of this IVS8 5t/Ivs8 5t. At first they called it atypical Cf. But since have been put in the full Cf category. When we first started going to the clinic they said it would present mildly with no pancreas...
  7. C

    mutation info

    Would any body have info on this mutation Ivs8 5t. Two of my children have two copies of this IVS8 5t/Ivs8 5t. At first they called it atypical Cf. But since have been put in the full Cf category. When we first started going to the clinic they said it would present mildly with no pancreas...
  8. C

    mutation info

    Would any body have info on this mutation Ivs8 5t. Two of my children have two copies of this IVS8 5t/Ivs8 5t. At first they called it atypical Cf. But since have been put in the full Cf category. When we first started going to the clinic they said it would present mildly with no pancreas...
  9. C

    mutation info

    Would any body have info on this mutation Ivs8 5t. Two of my children have two copies of this IVS8 5t/Ivs8 5t. At first they called it atypical Cf. But since have been put in the full Cf category. When we first started going to the clinic they said it would present mildly with no pancreas...
  10. C

    mutation info

    Would any body have info on this mutation Ivs8 5t. Two of my children have two copies of this IVS8 5t/Ivs8 5t. At first they called it atypical Cf. But since have been put in the full Cf category. When we first started going to the clinic they said it would present mildly with no pancreas...
  11. C

    Should I accept 75 % lung function im my

    Nicole, Thank you, we love Dr.Varlotta she was carrying Hannah around the halls when she was scared for the next IV( She is small) and she would come in and sit with her and play while I got coffee. You can tell how much she loves her patients!! ALl the CF DRS. there are great . DR. Steinfeld...
  12. C

    Should I accept 75 % lung function im my

    Nicole, Thank you, we love Dr.Varlotta she was carrying Hannah around the halls when she was scared for the next IV( She is small) and she would come in and sit with her and play while I got coffee. You can tell how much she loves her patients!! ALl the CF DRS. there are great . DR. Steinfeld...
  13. C

    Should I accept 75 % lung function im my

    Nicole, Thank you, we love Dr.Varlotta she was carrying Hannah around the halls when she was scared for the next IV( She is small) and she would come in and sit with her and play while I got coffee. You can tell how much she loves her patients!! ALl the CF DRS. there are great . DR. Steinfeld...
  14. C

    Should I accept 75 % lung function im my

    Nicole, Thank you, we love Dr.Varlotta she was carrying Hannah around the halls when she was scared for the next IV( She is small) and she would come in and sit with her and play while I got coffee. You can tell how much she loves her patients!! ALl the CF DRS. there are great . DR. Steinfeld...
  15. C

    Should I accept 75 % lung function im my

    Nicole, Thank you, we love Dr.Varlotta she was carrying Hannah around the halls when she was scared for the next IV( She is small) and she would come in and sit with her and play while I got coffee. You can tell how much she loves her patients!! ALl the CF DRS. there are great . DR. Steinfeld...
  16. C

    Should I accept 75 % lung function im my

    Nicole, Thank you, we love Dr.Varlotta she was carrying Hannah around the halls when she was scared for the next IV( She is small) and she would come in and sit with her and play while I got coffee. You can tell how much she loves her patients!! ALl the CF DRS. there are great . DR. Steinfeld...
  17. C

    Should I accept 75 % lung function im my

    Thank you to all who responed . I will try not to compare them to each other. The idea of inviting family to clinic is good I will give that a try!! I am going to go ahead and ask them to set up a tune up for him to see if it improves. I just did not want to come off as wanting him to sit there...
  18. C

    Should I accept 75 % lung function im my

    Thank you to all who responed . I will try not to compare them to each other. The idea of inviting family to clinic is good I will give that a try!! I am going to go ahead and ask them to set up a tune up for him to see if it improves. I just did not want to come off as wanting him to sit there...
  19. C

    Should I accept 75 % lung function im my

    Thank you to all who responed . I will try not to compare them to each other. The idea of inviting family to clinic is good I will give that a try!! I am going to go ahead and ask them to set up a tune up for him to see if it improves. I just did not want to come off as wanting him to sit there...
  20. C

    Should I accept 75 % lung function im my

    Thank you to all who responed . I will try not to compare them to each other. The idea of inviting family to clinic is good I will give that a try!! I am going to go ahead and ask them to set up a tune up for him to see if it improves. I just did not want to come off as wanting him to sit there...
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