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Our 2 yr old daughter has the DF508 and the 1717-1G<A mutations. I am not sure if this is the same mutation of your grandson but it seems similar? Do you have the excate numbers correct? What we have found is that is very rare only about 7% of cfers have it but it is a stage 1 mutation that...

Our 2 yr old daughter has the DF508 and the 1717-1G<A mutations. I am not sure if this is the same mutation of your grandson but it seems similar? Do you have the excate numbers correct? What we have found is that is very rare only about 7% of cfers have it but it is a stage 1 mutation that...

Hi Sheli~ Congrats! I know where you are coming from. I am due THIS FRIDAY with our 3rd little girl. Our first we had no idea they had no screening and she is not a carrier and no cf! Our 2nd we were screened and we were surprised that we both came back carriers and of course she has cf. I was...

Hi Tamie, The bottle says Ultrase pancrelipase. I don't see anywhere that it says MT12?? It might be a different dosage?? They are still available. Blythe

We have switched our daughter to Creon enzymes so i have 5 unopened bottles of the Ultrease pancrelipase. 1 of the bottles of enzymes expires this month but the rest expires in 2007. I also have 5 bottles of the Pediatric ADEKS available as well. Please email me if you are interested...

I am sure you may have heard of this CD. But those of you who haven't it is various artists/songwriters that came together to come up with a cd to help fundraise for cf. ALL PROCEEDS go to finding a cure for cf!!! I am listening to it now and the main song One Step closer is the theme song for...

My 4 month old has been in the hospital for iv antibotics after a month of coughing alot. She would cough so hard she would gag and throw-up her thick phlegm. She does not have pseudomonas, but she has been on antibotics for 3 months out of her 4 months of life! It really was not that bad to be...

My 4 month old has been in the hospital for iv antibotics after a month of coughing alot. She would cough so hard she would gag and throw-up her thick phlegm. She does not have pseudomonas, but she has been on antibotics for 3 months out of her 4 months of life! It really was not that bad to be...

My husband and i got our flu shots today at our GP doctor. First thing they said was "we are only giving them to high risk" and we repied great our daughter has cf. They didn't even ask us for any proof!! I thought it would be a little more controlled?