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  1. J

    What do you culture??? and CF adult clinic in NJ

    Hi, I am just wondering if everyone on here with CF always has something in their culture.. I have only cultured Psedumonas a few times and most of the time my cultures come back negative.. with only normal flora or normal bacteria in it.. I understand I am really lucky.. though my doctor...
  2. J

    Emily, Julie and Coll. where are you guys??

    Oh good Julie sounds like you are having loads of fun.. I hope you have a great time and that you get to rest post vacation as well.. See you when you get back.. Glad to know Coll is around but having fun in the summer and Emily is MIA which it really isn't a bad time to be MIA with all the...
  3. J

    Social Anxiety Disorder?

    I take Prednisone every day and when I am sick I take real high doses of it.. On a lower dose I don't notice to many side effects but on the higher dose I notice I am real moody, one minute I am crying the next I want to yell at everyone and the next I am in love with the world.. Prednisone can...
  4. J

    New Member

    Hi, Welcome.. This board is really great at lending support and understanding as well as lots of knowledge. I was Dx at 29 and I am now 32... It is quite an adjustment to have to make .. and a ton of information to absorb...How is your husband and his overall health? I am always so curious...
  5. J

    Emily, Julie and Coll. where are you guys??

    Hi, I was just wondering where you guys were ???.. I hope you are all doing good and just busy with life which would be a really good thing.. I just miss your posts.. I am used to seeing you guys post more often... Hope you are all well and Julies husband Mark too.. Hey while I am making a...
  6. J

    Divorce rate with parents of CF'ers

    I am not a huge fan of divorce however, I do feel it has its place. I have CF but my parents didn't know when I was little... but I was sick all the time and my parents constantly fought.. My dad and mom got divorced when I was 12 and the divorce was final when I was 16. My dad married my moms...
  7. J

    $85,209.00 hospital bill

    I just wanted to post an update because everyone has been so great..... My insurance company called me back ... I am only responsible for $2500 .. which is maximum out of pocket co pay..That is it. The hospital was not looked at as Inner Circle where I would have a zero co pay, but it was...
  8. J

    $85,209.00 hospital bill

    I just wanted to post an update because everyone has been so great..... My insurance company called me back ... I am only responsible for $2500 .. which is maximum out of pocket co pay..That is it. The hospital was not looked at as Inner Circle where I would have a zero co pay, but it was...
  9. J

    To adult Cfers...Do you ever realize....

    I think it is okay for parents to come on here and vent if they want or ask questions or share ...... I did get a little upset because emotionally I hate being a burden to my family.. I hate it hate it hate it.. I feel like I am taking years off their lives because they worry so much about me...
  10. J

    I feel like a loser

    My first reaction to you was I felt bad for you.. but if you are like me at all that is the last thing that we need or want.. I totally understand how you feel and in fact was thinking the same way last night. My PFTS are quite high but I have a ton of other medical conditions which make me feel...
  11. J

    The big Three Ohhhhhhh

    Luke, I understand the feeling of thinking you would be more accomplished.. we all go though that.. I am happy to have accomplished another year alive... I hope you enjoy your birthday and have a wonderful day celebrating you. Happy Birthday Jennifer
  12. J

    The big Three Ohhhhhhh

    Luke, I understand the feeling of thinking you would be more accomplished.. we all go though that.. I am happy to have accomplished another year alive... I hope you enjoy your birthday and have a wonderful day celebrating you. Happy Birthday Jennifer
  13. J

    $85,209.00 hospital bill

    UGG I just posted a long response and then remembered I didn't log in and well when I logged in I lost my whole post... yeash THank you so much for all your responses.. I really appreciate them so much..I feel better just reading them and feeling supported.. I live in NJ and I went to...
  14. J

    CF and Employment

    Hi, I work part time in an emergency room about 16 hours a week. I spend most of the time doing patient care but if I get to tired, I switch and put drs orders in the computer or make calls to doctors or discharge papers whatever as long as I sit down. My work is very, very, good to me and...
  15. J

    Jewlery and CF

    AWWWWW Emily that is so cute that Mike wears your old bracelett around his neck.. What a sweet and loving thing to do.... I just had to comment on that ..... He sounds like a keeper........ I don't know if it is the steroids that are making me sweat more or what, I don't feel like I am...
  16. J

    Putting on my Happy Face

    I love this topic.. I bet we all could be called the Queens and Kings of Happy Face. I usually am pretty happy though and don't have to fake it, what makes me unhappy and drained is having to explain to everyone that I am okay ... I spend so much time doing that, that it makes me drained and...
  17. J

    Little bit of fun

    OOps that wasn't a question that was asked of me.. I just reread the post.....duh me
  18. J

    Little bit of fun

    This is kind of funny and dumb at the same time. Being that I was just dx at 29 and my parents are divorced..they really don't get along and have not spoken in years.. My dad insists that it was my mothers side of the family that gave me CF.. he said their is no way that he could have done that...
  19. J

    Jewlery and CF

    I was wondering if anyone else has the same problem as me... All my jewlery is breaking right off of me... My necklaces are just falling right apart the chain is litterally crumbling, my braceletts are turning colors so fast and then the chain breaks... I know that I have had CF my whole life...
  20. J

    never had lung problems

    Oh you poor thing, That guy who said that to you should be put out of business...Don't listen to him and don't go back to him... The only way to be dx with CF is to have a sweat chloride test or a genetic test done. Their is no way a doctor can say you have CF by doing accupuncture, at least...
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