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  1. K

    Grandson just diagnosed with CF

    Alyssa, Just saw your most recent post about Craig. Thank you so much for helping me in my search for understanding. It just confirms my belief that people can do so much to help each other just by caring and communicating. I found out more in the last 15 minutes than I have in the last two...
  2. K

    Grandson just diagnosed with CF

    Thanks for your response Alyssa. My grandson, Hayden, is asymptomatice as far as I can tell without specific testing. He is up to 10.2 lbs from a birth weight of 8.7 lbs on Dec. 5th. (includes a drop in weight just after birth to 8.2 lbs). He was sent for a Sweat Test only because of the...
  3. K

    Grandson just diagnosed with CF

    Thanks for your response Alyssa. My grandson, Hayden, is asymptomatice as far as I can tell without specific testing. He is up to 10.2 lbs from a birth weight of 8.7 lbs on Dec. 5th. (includes a drop in weight just after birth to 8.2 lbs). He was sent for a Sweat Test only because of the...
  4. K

    Grandson just diagnosed with CF

    Thanks for your response Alyssa. My grandson, Hayden, is asymptomatice as far as I can tell without specific testing. He is up to 10.2 lbs from a birth weight of 8.7 lbs on Dec. 5th. (includes a drop in weight just after birth to 8.2 lbs). He was sent for a Sweat Test only because of the...
  5. K

    Grandson just diagnosed with CF

    Thanks for your response Alyssa. My grandson, Hayden, is asymptomatice as far as I can tell without specific testing. He is up to 10.2 lbs from a birth weight of 8.7 lbs on Dec. 5th. (includes a drop in weight just after birth to 8.2 lbs). He was sent for a Sweat Test only because of the...
  6. K

    Grandson just diagnosed with CF

    Thanks for your response Alyssa. My grandson, Hayden, is asymptomatice as far as I can tell without specific testing. He is up to 10.2 lbs from a birth weight of 8.7 lbs on Dec. 5th. (includes a drop in weight just after birth to 8.2 lbs). He was sent for a Sweat Test only because of the...
  7. K

    Grandson just diagnosed with CF

    My 4 week old grandson was just given a diagnosis of CF based on positive NBS of two mutations R117H/R117H. Sweat test performed today at MCG in Augusta, Ga came back normal, however diagnosis was handed out based on appearance of two mutations - which I guess means homozygous for R117H. MD...
  8. K

    Grandson just diagnosed with CF

    My 4 week old grandson was just given a diagnosis of CF based on positive NBS of two mutations R117H/R117H. Sweat test performed today at MCG in Augusta, Ga came back normal, however diagnosis was handed out based on appearance of two mutations - which I guess means homozygous for R117H. MD...
  9. K

    Grandson just diagnosed with CF

    My 4 week old grandson was just given a diagnosis of CF based on positive NBS of two mutations R117H/R117H. Sweat test performed today at MCG in Augusta, Ga came back normal, however diagnosis was handed out based on appearance of two mutations - which I guess means homozygous for R117H. MD...
  10. K

    Grandson just diagnosed with CF

    My 4 week old grandson was just given a diagnosis of CF based on positive NBS of two mutations R117H/R117H. Sweat test performed today at MCG in Augusta, Ga came back normal, however diagnosis was handed out based on appearance of two mutations - which I guess means homozygous for R117H. MD...
  11. K

    Grandson just diagnosed with CF

    My 4 week old grandson was just given a diagnosis of CF based on positive NBS of two mutations R117H/R117H. Sweat test performed today at MCG in Augusta, Ga came back normal, however diagnosis was handed out based on appearance of two mutations - which I guess means homozygous for R117H. MD...
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