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Those are definately great idea's. When we go, we are taking 4 kids with us. They try and get all of our CF children in one day so we dont have to make the 3 hour car ride more then once. (at least for check ups) The things that we bring are: Books, crayons and coloring books, hotwheels...

Those are definately great idea's. When we go, we are taking 4 kids with us. They try and get all of our CF children in one day so we dont have to make the 3 hour car ride more then once. (at least for check ups) The things that we bring are: Books, crayons and coloring books, hotwheels...

Those are definately great idea's. When we go, we are taking 4 kids with us. They try and get all of our CF children in one day so we dont have to make the 3 hour car ride more then once. (at least for check ups) The things that we bring are: Books, crayons and coloring books, hotwheels...

Those are definately great idea's. When we go, we are taking 4 kids with us. They try and get all of our CF children in one day so we dont have to make the 3 hour car ride more then once. (at least for check ups) The things that we bring are: Books, crayons and coloring books, hotwheels...

Those are definately great idea's. <br />When we go, we are taking 4 kids with us. They try and get all of our CF children in one day so we dont have to make the 3 hour car ride more then once. (at least for check ups) <br />The things that we bring are: <br />Books, crayons and coloring books...

Wow!! Most of the children are doing much more then Dylan is doing. I thought 750 ml was bad. The health care company I spoke to today said that they have had a problem with the Kangaroo Joey pumps dispensing to fast. Why do they even start with them then??? We will mess around with this pump a...

Wow!! Most of the children are doing much more then Dylan is doing. I thought 750 ml was bad. The health care company I spoke to today said that they have had a problem with the Kangaroo Joey pumps dispensing to fast. Why do they even start with them then??? We will mess around with this pump a...

Wow!! Most of the children are doing much more then Dylan is doing. I thought 750 ml was bad. The health care company I spoke to today said that they have had a problem with the Kangaroo Joey pumps dispensing to fast. Why do they even start with them then??? We will mess around with this pump a...

Wow!! Most of the children are doing much more then Dylan is doing. I thought 750 ml was bad. The health care company I spoke to today said that they have had a problem with the Kangaroo Joey pumps dispensing to fast. Why do they even start with them then??? We will mess around with this pump a...

Wow!! Most of the children are doing much more then Dylan is doing. I thought 750 ml was bad. The health care company I spoke to today said that they have had a problem with the Kangaroo Joey pumps dispensing to fast. Why do they even start with them then??? We will mess around with this pump a...

Its been 2 weeks since he has had the tube put in. The first week went really well as soon as the pain subsided. One week from his surgery he decided to he was feeling good and went to the next door neighbors and played the Wii. Not good for someone who just had surgery on their belly. # 10 pain...

Its been 2 weeks since he has had the tube put in. The first week went really well as soon as the pain subsided. One week from his surgery he decided to he was feeling good and went to the next door neighbors and played the Wii. Not good for someone who just had surgery on their belly. # 10 pain...

Its been 2 weeks since he has had the tube put in. The first week went really well as soon as the pain subsided. One week from his surgery he decided to he was feeling good and went to the next door neighbors and played the Wii. Not good for someone who just had surgery on their belly. # 10 pain...

Its been 2 weeks since he has had the tube put in. The first week went really well as soon as the pain subsided. One week from his surgery he decided to he was feeling good and went to the next door neighbors and played the Wii. Not good for someone who just had surgery on their belly. # 10 pain...

Its been 2 weeks since he has had the tube put in. The first week went really well as soon as the pain subsided. One week from his surgery he decided to he was feeling good and went to the next door neighbors and played the Wii. Not good for someone who just had surgery on their belly. # 10 pain...

Did your CF doc want to do a CF "tune up" a couple of days before surgery? They increased Dylan's Albuterol and Chest compressions to 4 times a day 2 days prior. This seemed to keep his lungs perfect for the surgery. If not you might want to ask them if you can do that. Dylan woke up the...

Did your CF doc want to do a CF "tune up" a couple of days before surgery? They increased Dylan's Albuterol and Chest compressions to 4 times a day 2 days prior. This seemed to keep his lungs perfect for the surgery. If not you might want to ask them if you can do that. Dylan woke up the...

Did your CF doc want to do a CF "tune up" a couple of days before surgery? They increased Dylan's Albuterol and Chest compressions to 4 times a day 2 days prior. This seemed to keep his lungs perfect for the surgery. If not you might want to ask them if you can do that. Dylan woke up the...

Did your CF doc want to do a CF "tune up" a couple of days before surgery? They increased Dylan's Albuterol and Chest compressions to 4 times a day 2 days prior. This seemed to keep his lungs perfect for the surgery. If not you might want to ask them if you can do that. Dylan woke up the...

Did your CF doc want to do a CF "tune up" a couple of days before surgery? They increased Dylan's Albuterol and Chest compressions to 4 times a day 2 days prior. This seemed to keep his lungs perfect for the surgery. If not you might want to ask them if you can do that. <br /> <br />Dylan woke...