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Sometimes you wonder if the right hand knows what the left is doing. This whole process is scary and so abnormal from what we are used to. This is not only a change for my son but for the whole family as well. Our goal is to keep him as healthy as we can and we will do anything to achieve that...

Sometimes you wonder if the right hand knows what the left is doing. This whole process is scary and so abnormal from what we are used to. This is not only a change for my son but for the whole family as well. Our goal is to keep him as healthy as we can and we will do anything to achieve that...

Sometimes you wonder if the right hand knows what the left is doing. This whole process is scary and so abnormal from what we are used to. This is not only a change for my son but for the whole family as well. Our goal is to keep him as healthy as we can and we will do anything to achieve that...

Hello again. We just finally got the diagnosis we were hoping we wouldnt receive. Now hopefully he will get the care that he needs. Tomorrow, we will seeing his Doctor to start treatment and there are certain test that they have to do. One of which is a lung test. Is this the same as his...

Hello again. We just finally got the diagnosis we were hoping we wouldnt receive. Now hopefully he will get the care that he needs. Tomorrow, we will seeing his Doctor to start treatment and there are certain test that they have to do. One of which is a lung test. Is this the same as his...

Hello again. We just finally got the diagnosis we were hoping we wouldnt receive. Now hopefully he will get the care that he needs. Tomorrow, we will seeing his Doctor to start treatment and there are certain test that they have to do. One of which is a lung test. Is this the same as his...

Hello again. We just finally got the diagnosis we were hoping we wouldnt receive. Now hopefully he will get the care that he needs. Tomorrow, we will seeing his Doctor to start treatment and there are certain test that they have to do. One of which is a lung test. Is this the same as his...

Hello again. We just finally got the diagnosis we were hoping we wouldnt receive. Now hopefully he will get the care that he needs. <br />Tomorrow, we will seeing his Doctor to start treatment and there are certain test that they have to do. One of which is a lung test. Is this the same as his...

Thank you Steve, So If they are on the same does that mean that it isnt CF? And if it is atypical Cf then should he be treated with similar meds as someone with typical Cf? Thank you, Tina

Thank you, I found it...I accidently posted it twice!! LOl Tina

Thank you, I found it...I accidently posted it twice!! LOl Tina

Thank you, I found it...I accidently posted it twice!! LOl Tina

Thank you, I found it...I accidently posted it twice!! LOl Tina

Thank you, <br /> <br />I found it...I accidently posted it twice!! LOl <br /> <br />Tina

Genetics testing THis is a question for Steve....I know that I have posted twice,,,sorry. Hello, Here were the test results CFTR Full Gene Known Mutation R117H Novel Variants None detected TG repeat / Poly T Variant (TG)12-5T / (TG)10-7T Further family testing needed.... What does...

Hello, Here were the test results CFTR Full Gene Known Mutation R117H Novel Variants None detected TG repeat / Poly T Variant (TG)12-5T / (TG)10-7T Further family testing needed.... What does the mutation tell us and What will our blood tell you? Devos Childrens Hospitol tells me that he...

Hello, Here were the test results CFTR Full Gene Known Mutation R117H Novel Variants None detected TG repeat / Poly T Variant (TG)12-5T / (TG)10-7T Further family testing needed.... What does the mutation tell us and What will our blood tell you? Devos Childrens Hospitol tells me that he...

Hello, Here were the test results CFTR Full Gene Known Mutation R117H Novel Variants None detected TG repeat / Poly T Variant (TG)12-5T / (TG)10-7T Further family testing needed.... What does the mutation tell us and What will our blood tell you? Devos Childrens Hospitol tells me that he...

Hello, Here were the test results CFTR Full Gene Known Mutation R117H Novel Variants None detected TG repeat / Poly T Variant (TG)12-5T / (TG)10-7T Further family testing needed.... What does the mutation tell us and What will our blood tell you? Devos Childrens Hospitol tells me that he...

Hello, <br /> <br />Here were the test results <br /> <br />CFTR Full Gene Known Mutation R117H <br />Novel Variants None detected <br />TG repeat / Poly T Variant (TG)12-5T / (TG)10-7T <br /> <br />Further family testing needed.... <br />What does the mutation tell us and What will our...