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  1. C

    More of and update...

    So its been almost 2 weeks since they admitted Austin into the hospital. Poor guy! They have tried to get a pick line in him but have been unsuccessfull. They were trying again this morning hopefully it works. Poor thing has been poked so man time b/c they can't get a pick line and they keep...
  2. C

    More of and update...

    So its been almost 2 weeks since they admitted Austin into the hospital. Poor guy! They have tried to get a pick line in him but have been unsuccessfull. They were trying again this morning hopefully it works. Poor thing has been poked so man time b/c they can't get a pick line and they keep...
  3. C

    More of and update...

    So its been almost 2 weeks since they admitted Austin into the hospital. Poor guy! They have tried to get a pick line in him but have been unsuccessfull. They were trying again this morning hopefully it works. Poor thing has been poked so man time b/c they can't get a pick line and they keep...
  4. C

    Nephews dialy update

    I just wanted to let you all know I visited my nephew last night. Its only been a day but he looks and acts much better even with the tubes comong out of him. He had his first dose of enzymes yesterday and did fine. He actually has color and doesn't cry when you put him down unless the nurse is...
  5. C

    Nephews dialy update

    I just wanted to let you all know I visited my nephew last night. Its only been a day but he looks and acts much better even with the tubes comong out of him. He had his first dose of enzymes yesterday and did fine. He actually has color and doesn't cry when you put him down unless the nurse is...
  6. C

    Nephews dialy update

    I just wanted to let you all know I visited my nephew last night. Its only been a day but he looks and acts much better even with the tubes comong out of him. He had his first dose of enzymes yesterday and did fine. He actually has color and doesn't cry when you put him down unless the nurse is...
  7. C

    Update on Nephew

    I talked with my mom this morning. She said they must of taken 15 viles of blood from him yesterday, for genetic testing (which I don't know how b/c he is so small), they saw about 20 doctors since it is a teaching hospital and was in the ER most of the day waiting for a bed to open up. Finally...
  8. C

    Update on Nephew

    I talked with my mom this morning. She said they must of taken 15 viles of blood from him yesterday, for genetic testing (which I don't know how b/c he is so small), they saw about 20 doctors since it is a teaching hospital and was in the ER most of the day waiting for a bed to open up. Finally...
  9. C

    Update on Nephew

    I talked with my mom this morning. She said they must of taken 15 viles of blood from him yesterday, for genetic testing (which I don't know how b/c he is so small), they saw about 20 doctors since it is a teaching hospital and was in the ER most of the day waiting for a bed to open up. Finally...
  10. C

    Nephew has been admitted...

    My sister is still breast feeding. He doesn't have an infection (he has been in and out of the ER 2 times this past week to see if he has RSV) They say his lungs are clear but he has a cough.
  11. C

    Nephew has been admitted...

    My sister is still breast feeding. He doesn't have an infection (he has been in and out of the ER 2 times this past week to see if he has RSV) They say his lungs are clear but he has a cough.
  12. C

    Nephew has been admitted...

    My sister is still breast feeding. He doesn't have an infection (he has been in and out of the ER 2 times this past week to see if he has RSV) They say his lungs are clear but he has a cough.
  13. C

    Nephew has been admitted...

    I wanted to thank everyone for all their help and support they gave me on my recent posts. I had my little sister read all the posts last night which helped ease some of her unanswered questions and lift her spirits some. I just learned that they have admitted my nephew to hospital where we were...
  14. C

    Nephew has been admitted...

    I wanted to thank everyone for all their help and support they gave me on my recent posts. I had my little sister read all the posts last night which helped ease some of her unanswered questions and lift her spirits some. I just learned that they have admitted my nephew to hospital where we were...
  15. C

    Nephew has been admitted...

    I wanted to thank everyone for all their help and support they gave me on my recent posts. I had my little sister read all the posts last night which helped ease some of her unanswered questions and lift her spirits some. I just learned that they have admitted my nephew to hospital where we were...
  16. C

    Newly Dignosed...Postive Sweat Test

    Sorry I mean to ask what kind of treatments should/can we be doing or expect to help him gain weight. He was born 7lbs 1.5oz and is now 6lbs 9-12oz. This is a major concern for us. Any advise will help
  17. C

    Newly Dignosed...Postive Sweat Test

    Sorry I mean to ask what kind of treatments should/can we be doing or expect to help him gain weight. He was born 7lbs 1.5oz and is now 6lbs 9-12oz. This is a major concern for us. Any advise will help
  18. C

    Newly Dignosed...Postive Sweat Test

    Sorry I mean to ask what kind of treatments should/can we be doing or expect to help him gain weight. He was born 7lbs 1.5oz and is now 6lbs 9-12oz. This is a major concern for us. Any advise will help
  19. C

    Newly Dignosed...Postive Sweat Test

    So our worst fears were confirmed today. Sweat test performed today is postive for CF. I know although relieved to know whats going on we are still very shocked and upset about it as I am sure all of you were when finding out. They want to see him tommorow to start him on treatment. So know what...
  20. C

    Newly Dignosed...Postive Sweat Test

    So our worst fears were confirmed today. Sweat test performed today is postive for CF. I know although relieved to know whats going on we are still very shocked and upset about it as I am sure all of you were when finding out. They want to see him tommorow to start him on treatment. So know what...
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