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Hi Angie I am Debra yes my Daughter got Diagnoised 3 weeks ago she is seventeen you can talk to me are anyone on here.

I wish everone would post the mutations of their child here if they know then and wouldnt mind Thanks

I am willing to share anything if it helps Debra mom of Tina

TO everone Tinas mutations are D11528 and 977INSA

Thank you so much Melissa you just dont know how much it means to me that all of you are here. Thank you Debra Tinas mom

I think I did that wrong sorry all Debra mom of Tina

I will get them and post them he said they are very rare sorry I dont have the paper right now my EX husband does but as soon as I do I will post them Thanks for your Support Debra mom of Tina

I dont have them right now my Xhusband does as soon as he gives them back I will let you know. They said they dont know as much because they are rare mutations. I feel like I am not getting all the answers I deserve. Thank you Debra mom of Tina

I will tell her to contact you but I have to give her a little time everone on her has given me so much hope for her future Thanks Debra mom of Tina<img src="i/expressions/angel_ani.gif" border="0">

Thank you so much Debra I think it would be great for tina to talk to you but I have to give her a little time to accept this Thank you all the advice is great Debra mom of Tina

Thank you very much Tina is in denial so I am trying to give her some time before I tell her about this but as soon as she starts to come around I will let her know Thank you so much Debra mom of Tina

Thank you I am trying to get that into her head but she is so stuborn I hope it will sink in soon. I am doing my best it is hard because she is not a little kid anymore. Thank you for the Great advice Debra mom of Tina

Thank you so much TINA has 3 meds for acid on her stomach and she doesnt understand why she should take them when her stomach doesnt hurt. Its so new to me its hard to explain. She was in the hospital about four years ago with pancreatitus The Doctors said it was caused by Depakote that she...

My daughter is 17 and diagnoised three weeks ago I know what your going threw and I am so sorry.

Hi IM Debra and my Daughter was diagnoised 3 weeks ago at 17 she is devastated. She does not want to talk about it she thinks the treaments are crazy. Please give me advice what can I do to help her? She has 2 rare mutations <img src="i/expressions/face-icon-small-sad.gif"...

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