berrysgirl
New member
I am willing to share anything if it helps Debra mom of Tina
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MY Daughter was Diagnoised at 17
- Thread starter berrysgirl
- Start date
berrysgirl
New member
I wish everone would post the mutations of their child here if they know then and wouldnt mind Thanks
berrysgirl
New member
Hi Angie I am Debra yes my Daughter got Diagnoised 3 weeks ago she is seventeen you can talk to me are anyone on here.
Emily65Roses
New member
<blockquote>Quote<br><hr><i>Originally posted by: <b>EmilysMom</b></i><br>Emily's mutations are DeltaF508 from me (the most common one) and from Dad it's 1898+1G>A (I think). <hr></blockquote>
Yes, you got it right. DeltaF508, duh, no problem. But you got the weird one right too. 1898+1G>A
Yes, you got it right. DeltaF508, duh, no problem. But you got the weird one right too. 1898+1G>A
supermanfan
New member
<img src="i/expressions/face-icon-small-shocked.gif" border="0"> OMG <img src="i/expressions/face-icon-small-shocked.gif" border="0"> Emily... I just noticed your personal statement. LOL
Emily65Roses
New member
<img src="i/expressions/angel_ani.gif" border="0">
Debra, if you wanted to respond to someone directly for something they said (I saw your post where you thought you "did it wrong") you can use the little paddlock looking button (at the top of every single post next to the lightbulb and magnifiying glass) that is the Private messenger (a few people have theirs turned off). It will go directly into a little "mailbox" for the individual person on this site. If you get private messaged, go to the top of any page and look right below the big huge rose. It has the little padlock and will say "no new message(s) or flash when you have messages and say "1 new message(s)". Hope this helps.
Otherwise, if you post, even if you hit the reply button on a specific persons name, it still posts your response at the bottom of the topic you are on. The Private messaging is the only way to send it directly to the individual.
Everyone else has already said to you what I would say regarding your daughter. I'm not a CFer but the wife of a wonderful man who has CF. There is Life with CF! She can talk to me (although I am sure talking to someone else with CF is probably more benificial) anytime she wants, division902@hotmail.com
Welcome to the site!
Otherwise, if you post, even if you hit the reply button on a specific persons name, it still posts your response at the bottom of the topic you are on. The Private messaging is the only way to send it directly to the individual.
Everyone else has already said to you what I would say regarding your daughter. I'm not a CFer but the wife of a wonderful man who has CF. There is Life with CF! She can talk to me (although I am sure talking to someone else with CF is probably more benificial) anytime she wants, division902@hotmail.com
Welcome to the site!
Hi. I'm 20, wasn't diagnosed until 16 mostly due to uncontrollable respiratory problems that had previously been diagnosed as reflux,asthma,allergies,pyschogenic cough etc. It was a shock but looking back even as a baby/toddler I had quite a few symptoms of it.
Anyway if she wants to talk my email is BekahJ@sccc.tv
Anyway if she wants to talk my email is BekahJ@sccc.tv