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  1. P

    New and needing some help

    ... i feel ya..... my baby is almost 9 mos... her daddy doesnt help out at all.. he comes and goes... i stay at home to take care of her too... we get welfare? 225.00 a month? but we have great insurance so it makes a difference..... there is a thing that they told me about at the cf clinic ...
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    Pregnant - was also posted in "Newly Diagnosed"

    Pregnant - was also posted in "Newly Diagnosed my baby was diagnosed by a chronic villus sampling.. while i was pregnant. but she had the bright bowel thing too... and when she was born she pooped fine... so that doesnt neccasarliy mean that.................... i think.......... maybe?
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    Pregnant - was also posted in "Newly Diagnosed"

    Pregnant - was also posted in "Newly Diagnosed my baby was diagnosed by a chronic villus sampling.. while i was pregnant. but she had the bright bowel thing too... and when she was born she pooped fine... so that doesnt neccasarliy mean that.................... i think.......... maybe?
  4. P

    Pregnant - was also posted in "Newly Diagnosed"

    Pregnant - was also posted in "Newly Diagnosed my baby was diagnosed by a chronic villus sampling.. while i was pregnant. but she had the bright bowel thing too... and when she was born she pooped fine... so that doesnt neccasarliy mean that.................... i think.......... maybe?
  5. P

    Living in Ignorance

    I get that crap from everyone.... i live in kentucky... were APPARENTLY education (about cf at least) isnt high on anyones list of priorities.... my mom..... introduces arionna as "this is my grandbaby... arionna she has that *whispers* cf.. u know...." and then the complete stranger shes...
  6. P

    Living in Ignorance

    I get that crap from everyone.... i live in kentucky... were APPARENTLY education (about cf at least) isnt high on anyones list of priorities.... my mom..... introduces arionna as "this is my grandbaby... arionna she has that *whispers* cf.. u know...." and then the complete stranger shes...
  7. P

    Living in Ignorance

    I get that crap from everyone.... i live in kentucky... were APPARENTLY education (about cf at least) isnt high on anyones list of priorities.... my mom..... introduces arionna as "this is my grandbaby... arionna she has that *whispers* cf.. u know...." and then the complete stranger shes...
  8. P

    How come I didn't know this?

    OMG i hope i havent hurt my baby! NO ONE ever told me that! and i knew arionna had cf when i was pregnant.. i was obcessed... i researched EVERYTHING.... never heard that................. im glad u said something
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    How come I didn't know this?

    OMG i hope i havent hurt my baby! NO ONE ever told me that! and i knew arionna had cf when i was pregnant.. i was obcessed... i researched EVERYTHING.... never heard that................. im glad u said something
  10. P

    How come I didn't know this?

    OMG i hope i havent hurt my baby! NO ONE ever told me that! and i knew arionna had cf when i was pregnant.. i was obcessed... i researched EVERYTHING.... never heard that................. im glad u said something
  11. P

    Nebs and pt on babies/toddlers

    I have done everything but hog tie my 8 1/2 month old girl. I have the same problem! We got an inhaler and thats great for the albuterol... but the tobi and pulmozyme u just gotta tough it out. If u figure out a better way let me know... somethings wrong with out thingie... and it takes tobi 30...
  12. P

    Nebs and pt on babies/toddlers

    I have done everything but hog tie my 8 1/2 month old girl. I have the same problem! We got an inhaler and thats great for the albuterol... but the tobi and pulmozyme u just gotta tough it out. If u figure out a better way let me know... somethings wrong with out thingie... and it takes tobi 30...
  13. P

    Nebs and pt on babies/toddlers

    I have done everything but hog tie my 8 1/2 month old girl. I have the same problem! We got an inhaler and thats great for the albuterol... but the tobi and pulmozyme u just gotta tough it out. If u figure out a better way let me know... somethings wrong with out thingie... and it takes tobi 30...
  14. P

    .smoking

    smoking my daughter has CF and thats the biggest problem that I face. We had to stop visiting certain family members because they smoke in their homes. Some restaurants we cant go into, and the idiots that smoke RIGHT BY THE DOOR at stores..... i wanna just run them over with my shopping cart...
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    .smoking

    smoking my daughter has CF and thats the biggest problem that I face. We had to stop visiting certain family members because they smoke in their homes. Some restaurants we cant go into, and the idiots that smoke RIGHT BY THE DOOR at stores..... i wanna just run them over with my shopping cart...
  16. P

    .smoking

    smoking my daughter has CF and thats the biggest problem that I face. We had to stop visiting certain family members because they smoke in their homes. Some restaurants we cant go into, and the idiots that smoke RIGHT BY THE DOOR at stores..... i wanna just run them over with my shopping cart...
  17. P

    How Were You / Your Loved One Diagnosed?

    Well I've read though almost everyones response to ur question and i think I'm the first to say that my daughter was diagnosed prenatally. When i was like.... 3-4ish months pregnant I had a chronic villus sampling done (like an amino only .... not.... .through.. ur um... tummy...) anyways. It...
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