Search results

  1. J

    Converting Dairy-based protein drinks...

    I am so glad you brought up this subject. Just yesterday I was thinking about all the not-so-healthy things our kids are supposed to eat just to get more calories. I've always felt that there must be a better way. Ella drinks CIB for breakfast and lunch with whole milk. It is so full of...
  2. J

    Question about Staph

    My 2-1/2 yr. old daughter has been culturing Staph Aureus since her first throat culture at 6 mo. At the clinic we were going to then, they told us a majority of people with CF culture Staph and it's no big deal, nothing to worry about, and no need to treat it. Okay... I know that's not true...
  3. J

    Frustrated with friends and family

    When my daughter was diagnosed as 6 mo. my side of the family was great.... phone calls, letters, lots of support, but we got nothing from my in-laws. There was the one phone call when we told them about Ella's diagnosis, and that was it.. for months. When my husband got up the nerve to...
  4. J

    malabsorption in breastfed babies

    I exclusively breastfed my daughter who was diagnosed at 6 months. Being my first child, I didn't have too much to compare it to, but.... her dirty diapers were not foul smelling and were not oily. They were a slight green color and she did have quite a few big ones some days, but not others...
  5. J

    Insurance Question

    Thanks guys. ~ Lindsay
  6. J

    Insurance Question

    I am in the beginning stages of getting The Vest for my 2 1/2 yr. old daughter and was told today her insurance coverage has a $3000/yr. maximum per individual. Does that mean that they will, in no way, pay more for the vest? I feel like we are at a time when we need to get the vest for her...
  7. J

    ? for parents of cfers

    I have a 2-1/2 yr. old who was dx at 6 months, and I felt the same way you do. When she was young, I did try to limit where I was and when... as she got older I have just been conscious of where I take her and when.... not to the grocery store on Saturday afternoon in the middle of winter (cold...
  8. J

    Which Vest is Best?

    I have a 2 1/2 yr old daughter who we are going to be starting on a vest very soon, but don't know which vest is better/best, and/or which company is best to work with. I know we are going to be paying a part of any vest we get, so I want to be sure we are getting THE BEST one out there. Our...
  9. J

    Enzyme Issues

    Thanks for the other brand names, we'll bring that up with them. She eats sweet potatoes, avocados, yogurt and bananas; a little melon and other fruit but nothing overly fatty or greasy at all. We'll keep trying. Thanks again Jon
  10. J

    Enzyme Issues

    My 9-month old daughter was diagnosed 4 months ago and was immediately started on Ultrase. She became very gassy and got very bad diaper rash, to the point that we stopped until we got the results of our fecal elastase test. The tests came back and we stared again, gassy this time not so much...
Top