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I know I post often about questions relating to cf, but after seeing two different GI specialists this week & showing them pictures of Vivi's BMs, they would not commit to saying either way, if they looked normal or not. They just shrugged & said they looked "normal & yet, not normal." <br />...

Tuesday Vivien had a repeat sweat test at a different CF center, it came back 10. The Pulomonologist believes there is no reason to push for the complete deletions & duplications CF test. He claims that since her initial sweat test was performed at a hospital that is only allowed to test, not...

Tuesday Vivien had a repeat sweat test at a different CF center, it came back 10. The Pulomonologist believes there is no reason to push for the complete deletions & duplications CF test. He claims that since her initial sweat test was performed at a hospital that is only allowed to test, not...

Tuesday Vivien had a repeat sweat test at a different CF center, it came back 10. The Pulomonologist believes there is no reason to push for the complete deletions & duplications CF test. He claims that since her initial sweat test was performed at a hospital that is only allowed to test, not...

Thanks ladies. Vivi's first test was completed at a credited CF testing center, yet they are not accredited to treat CF patients...not sure how that works. The test was borderline of 44. Her initial genetic test came back that she was not a carrier for the most common mutations of CF. She has...

Thanks ladies. Vivi's first test was completed at a credited CF testing center, yet they are not accredited to treat CF patients...not sure how that works. The test was borderline of 44. Her initial genetic test came back that she was not a carrier for the most common mutations of CF. She has...

Thanks ladies. Vivi's first test was completed at a credited CF testing center, yet they are not accredited to treat CF patients...not sure how that works. The test was borderline of 44. Her initial genetic test came back that she was not a carrier for the most common mutations of CF. She has...

My daughter met with her pediatrician today & we discussed all of her current issues (pneumonitis & mucusy stools), I again asked about the possibility of a CF diagnosis. He told me that CF patients don't normally "thrive" like Vivien is doing now (her initial diagnosis was "failure to thrive,"...

My daughter met with her pediatrician today & we discussed all of her current issues (pneumonitis & mucusy stools), I again asked about the possibility of a CF diagnosis. He told me that CF patients don't normally "thrive" like Vivien is doing now (her initial diagnosis was "failure to thrive,"...

My daughter met with her pediatrician today & we discussed all of her current issues (pneumonitis & mucusy stools), I again asked about the possibility of a CF diagnosis. He told me that CF patients don't normally "thrive" like Vivien is doing now (her initial diagnosis was "failure to thrive,"...

Thanks for the info. Vivi's pediatrician called me this afternoon, she has "infiltrates" on her lungs for the 4th time since birth. She also had a c. diff test that did show a toxin, he wants to repeat a stool culture this week. I will keep you all posted. Please pray for Vivien that the...

Thanks for the info. Vivi's pediatrician called me this afternoon, she has "infiltrates" on her lungs for the 4th time since birth. She also had a c. diff test that did show a toxin, he wants to repeat a stool culture this week. I will keep you all posted. Please pray for Vivien that the...

Thanks for the info. Vivi's pediatrician called me this afternoon, she has "infiltrates" on her lungs for the 4th time since birth. She also had a c. diff test that did show a toxin, he wants to repeat a stool culture this week. I will keep you all posted. Please pray for Vivien that the...

Thank you ladies. Vivi is gaining weight now, but I say it has to do with the fact that she is on 16 hours of continuous feeds through her G-tube. She had surgery that wont allow her to vomit, so she must keep the food in & digest it. I am assuming because she is gaining weight she may not have...

Thank you ladies. Vivi is gaining weight now, but I say it has to do with the fact that she is on 16 hours of continuous feeds through her G-tube. She had surgery that wont allow her to vomit, so she must keep the food in & digest it. I am assuming because she is gaining weight she may not have...

Thank you ladies. Vivi is gaining weight now, but I say it has to do with the fact that she is on 16 hours of continuous feeds through her G-tube. She had surgery that wont allow her to vomit, so she must keep the food in & digest it. I am assuming because she is gaining weight she may not have...

I am new to this CF forum, so I hope I am doing this right. I will begin by stating my Vivien has not been diagnosed as of yet with anything other than "failure to thrive, laryngomalacia & GERD." However, I would like to give you all a brief history and ask your thoughts, seeing as you all know...

I am new to this CF forum, so I hope I am doing this right. I will begin by stating my Vivien has not been diagnosed as of yet with anything other than "failure to thrive, laryngomalacia & GERD." However, I would like to give you all a brief history and ask your thoughts, seeing as you all know...

I am new to this CF forum, so I hope I am doing this right. I will begin by stating my Vivien has not been diagnosed as of yet with anything other than "failure to thrive, laryngomalacia & GERD." However, I would like to give you all a brief history and ask your thoughts, seeing as you all know...