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Semnle34 - my son has been sent from New England to National Jewish in Denver because they are supposedly the world experts on MCB. He has had it for nearly 7 years. Currently he is being evaluated for transplant. MCB is a disqualifying bacteria, but Boston and Columbia agreed to see him. He is...

Hall2Pitt, I'm glad you were able to have year long drug holiday - that must have been wonderful, especially if you felt well the whole year. My son (25) is flying from NY to Denver right now for his third visit to National Jewish to treat his M. abscessus. He has been treated with...

Daniela - From my research I think that Duke and Pitt are really the places to go. Of course there are challenges (financial and logistic) with moving far out of state for an undetermined length of time. I wish that I thought my son could get a transplant fast enough in Boston, but there just...

Daniela - my son is 25 and has just started being evaluated for transplant. It is very overwhelming. We live in New England and it seems the wait times are longest here. I hope that he might be able to go to Duke or Pitt where transplants seem to happen faster, but moving out of state will be...

it already was you... I appreciate that you are struggling. But, you have two healthy children, you know you are fortunate, you know the odds, and you know that the odds don't change with each pregnancy yet you are looking on a site populated by people who are profoundly affected by CF for...

My 20 year old son cultured Mycobacterium Abscessus(they first called it Mycobacterium Chelonae - I think it was renamed) a year ago May. It has been a terrible nightmare. He had been very healthy up until this bacteria hit him. He did not even have pseudomonas (homozygous for delta F 508) and...

My 20 year old son cultured Mycobacterium Abscessus(they first called it Mycobacterium Chelonae - I think it was renamed) a year ago May. It has been a terrible nightmare. He had been very healthy up until this bacteria hit him. He did not even have pseudomonas (homozygous for delta F 508) and...

My 20 year old son cultured Mycobacterium Abscessus(they first called it Mycobacterium Chelonae - I think it was renamed) a year ago May. It has been a terrible nightmare. He had been very healthy up until this bacteria hit him. He did not even have pseudomonas (homozygous for delta F 508) and...

My 20 year old son cultured Mycobacterium Abscessus(they first called it Mycobacterium Chelonae - I think it was renamed) a year ago May. It has been a terrible nightmare. He had been very healthy up until this bacteria hit him. He did not even have pseudomonas (homozygous for delta F 508) and...

My 20 year old son cultured Mycobacterium Abscessus(they first called it Mycobacterium Chelonae - I think it was renamed) a year ago May. It has been a terrible nightmare. He had been very healthy up until this bacteria hit him. He did not even have pseudomonas (homozygous for delta F 508) and...

Julie, Thank you for your kind reply. In May when this episode began my son was very ill (he was away at college came home having lost 30 lbs and sounding/looking AWFUL). It took a week to figure out what he was growing. None of the IV antibiotics were touching it. Finally we were told...

Julie, Thank you for your kind reply. In May when this episode began my son was very ill (he was away at college came home having lost 30 lbs and sounding/looking AWFUL). It took a week to figure out what he was growing. None of the IV antibiotics were touching it. Finally we were told...

Julie, Thank you for your kind reply. In May when this episode began my son was very ill (he was away at college came home having lost 30 lbs and sounding/looking AWFUL). It took a week to figure out what he was growing. None of the IV antibiotics were touching it. Finally we were told...

Julie, Thank you for your kind reply. In May when this episode began my son was very ill (he was away at college came home having lost 30 lbs and sounding/looking AWFUL). It took a week to figure out what he was growing. None of the IV antibiotics were touching it. Finally we were told...

Julie, <br /> <br />Thank you for your kind reply. <br /> <br />In May when this episode began my son was very ill (he was away at college came home having lost 30 lbs and sounding/looking AWFUL). It took a week to figure out what he was growing. None of the IV antibiotics were touching it...

Thanks so much. He had the portacath put in. He has been having some trouble with it - they can't always draw blood. He had a similar problem back in May when he had a picc line. At that time it turned out that he had developed multiple blood clots, which prolonged his admission. I hope that...

Thanks so much. He had the portacath put in. He has been having some trouble with it - they can't always draw blood. He had a similar problem back in May when he had a picc line. At that time it turned out that he had developed multiple blood clots, which prolonged his admission. I hope that...

Thanks so much. He had the portacath put in. He has been having some trouble with it - they can't always draw blood. He had a similar problem back in May when he had a picc line. At that time it turned out that he had developed multiple blood clots, which prolonged his admission. I hope that...

Thanks so much. He had the portacath put in. He has been having some trouble with it - they can't always draw blood. He had a similar problem back in May when he had a picc line. At that time it turned out that he had developed multiple blood clots, which prolonged his admission. I hope that...

Thanks so much. He had the portacath put in. He has been having some trouble with it - they can't always draw blood. He had a similar problem back in May when he had a picc line. At that time it turned out that he had developed multiple blood clots, which prolonged his admission. I hope that...