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  1. T

    504 Plans

    I have a 504 too set up through my councilor. During long hospital stays 3weeks or longer they sent a tutor (who is kinda useless). I also can leave class at anytime to go the bathroom, check my blood sugar, to cough, or if I feel I need to get up and walk around to help my lungs. The teachers...
  2. T

    504 Plans

    I have a 504 too set up through my councilor. During long hospital stays 3weeks or longer they sent a tutor (who is kinda useless). I also can leave class at anytime to go the bathroom, check my blood sugar, to cough, or if I feel I need to get up and walk around to help my lungs. The teachers...
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    Who Are Your Roll Models That Have CF?

    Bob Flanagan. Kind of a weird guy to respect, and if you're sensitive I don't suggest looking him up either. Diagnosed from birth and only given a few years to live, he made it past 40 and was a successful performance artists at that. My dream is to become a performing musician myself, so it's...
  4. T

    Who Are Your Roll Models That Have CF?

    Bob Flanagan. Kind of a weird guy to respect, and if you're sensitive I don't suggest looking him up either. Diagnosed from birth and only given a few years to live, he made it past 40 and was a successful performance artists at that. My dream is to become a performing musician myself, so it's...
  5. T

    Who Are Your Roll Models That Have CF?

    Bob Flanagan. Kind of a weird guy to respect, and if you're sensitive I don't suggest looking him up either. Diagnosed from birth and only given a few years to live, he made it past 40 and was a successful performance artists at that. My dream is to become a performing musician myself, so it's...
  6. T

    Who Are Your Roll Models That Have CF?

    Bob Flanagan. Kind of a weird guy to respect, and if you're sensitive I don't suggest looking him up either. Diagnosed from birth and only given a few years to live, he made it past 40 and was a successful performance artists at that. My dream is to become a performing musician myself, so it's...
  7. T

    Who Are Your Roll Models That Have CF?

    Bob Flanagan. Kind of a weird guy to respect, and if you're sensitive I don't suggest looking him up either. Diagnosed from birth and only given a few years to live, he made it past 40 and was a successful performance artists at that. My dream is to become a performing musician myself, so it's...
  8. T

    Stupid coments that tick you off

    When friends make the "Oh he's dying again" type joke every time I start choking around them. Not that I care about the comment itself, but I don't need my coughing pointed out every time it starts. I also get annoyed when people ask "Are you ok?" cause it's just so pointless. No I'm not, but...
  9. T

    Stupid coments that tick you off

    When friends make the "Oh he's dying again" type joke every time I start choking around them. Not that I care about the comment itself, but I don't need my coughing pointed out every time it starts. I also get annoyed when people ask "Are you ok?" cause it's just so pointless. No I'm not, but...
  10. T

    Stupid coments that tick you off

    When friends make the "Oh he's dying again" type joke every time I start choking around them. Not that I care about the comment itself, but I don't need my coughing pointed out every time it starts. I also get annoyed when people ask "Are you ok?" cause it's just so pointless. No I'm not, but...
  11. T

    Stupid coments that tick you off

    When friends make the "Oh he's dying again" type joke every time I start choking around them. Not that I care about the comment itself, but I don't need my coughing pointed out every time it starts. I also get annoyed when people ask "Are you ok?" cause it's just so pointless. No I'm not, but...
  12. T

    Stupid coments that tick you off

    When friends make the "Oh he's dying again" type joke every time I start choking around them. Not that I care about the comment itself, but I don't need my coughing pointed out every time it starts. I also get annoyed when people ask "Are you ok?" cause it's just so pointless. No I'm not, but...
  13. T

    Who are you in a nut shell

    who are you in a nut shell My name is Jesse I'm a 17 y/o male Live in Washington 5'7", weight around 120 CF @ birth, CFRD diagnosed last year Dozens of sinus surgeries, no more sense of smell I'm addicted to music, I play the guitar (and a handful of other instruments) I draw, photoshop, play a...
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    What makes kids with CF such picky eaters?

    I'm a very picky eater. A lot of it I think has to do with having no sense of smell, which nulls taste buds. Everything tastes dull and bland to me, and I get sick of everything just tasting like salt or sugar. I do go through months of really big cravings of certain foods though, then will over...
  15. T

    What makes kids with CF such picky eaters?

    I'm a very picky eater. A lot of it I think has to do with having no sense of smell, which nulls taste buds. Everything tastes dull and bland to me, and I get sick of everything just tasting like salt or sugar. I do go through months of really big cravings of certain foods though, then will over...
  16. T

    What makes kids with CF such picky eaters?

    I'm a very picky eater. A lot of it I think has to do with having no sense of smell, which nulls taste buds. Everything tastes dull and bland to me, and I get sick of everything just tasting like salt or sugar. I do go through months of really big cravings of certain foods though, then will over...
  17. T

    What makes kids with CF such picky eaters?

    I'm a very picky eater. A lot of it I think has to do with having no sense of smell, which nulls taste buds. Everything tastes dull and bland to me, and I get sick of everything just tasting like salt or sugar. I do go through months of really big cravings of certain foods though, then will over...
  18. T

    What makes kids with CF such picky eaters?

    I'm a very picky eater. A lot of it I think has to do with having no sense of smell, which nulls taste buds. Everything tastes dull and bland to me, and I get sick of everything just tasting like salt or sugar. I do go through months of really big cravings of certain foods though, then will over...
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