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In reply to Joanna. I am interested in helping you motivate CF australia to Lobby the government to speed approval. I rang them yesterday and I got an uninformed person who knew nothing at all about VX-770. Possibly there are some more informed people in the organisation. If we want to make it...

In reply to Joanna. I am interested in helping you motivate CF australia to Lobby the government to speed approval. I rang them yesterday and I got an uninformed person who knew nothing at all about VX-770. Possibly there are some more informed people in the organisation. If we want to make it...

Hi Joanna, did I read somewhere you are in Australia? I am near Melbourne, Australia and I hope my 22yo daughter can access one of the trials - her mutations are G551D & DF508. If you have any advice on how to go about it I would love to hear from you. Karen

Hi Joanna, did I read somewhere you are in Australia? I am near Melbourne, Australia and I hope my 22yo daughter can access one of the trials - her mutations are G551D & DF508. If you have any advice on how to go about it I would love to hear from you. Karen

Hi Joanna, did I read somewhere you are in Australia? I am near Melbourne, Australia and I hope my 22yo daughter can access one of the trials - her mutations are G551D & DF508. If you have any advice on how to go about it I would love to hear from you. Karen

Thank you all for your responses and advice. I rang Vertex and I believe my daughter will need to join a clinical trial. Cindy, from Vertex was very helpful and directed me to the correct US government website that shows where the trials are being held. I think my daughter will qualify for some...

Thank you all for your responses and advice. I rang Vertex and I believe my daughter will need to join a clinical trial. Cindy, from Vertex was very helpful and directed me to the correct US government website that shows where the trials are being held. I think my daughter will qualify for some...

Thank you all for your responses and advice. I rang Vertex and I believe my daughter will need to join a clinical trial. Cindy, from Vertex was very helpful and directed me to the correct US government website that shows where the trials are being held. I think my daughter will qualify for some...

Are there any other Australians that did not participate in the trial of VX -770 (Ivacafor - generic name or Kalydeco- brand name) who have successfully accessed this drug? My 22yo daughter has one copy of G551D mutation (the other is delta F508) and is experiencing an exacerbation of her...

Are there any other Australians that did not participate in the trial of VX -770 (Ivacafor - generic name or Kalydeco- brand name) who have successfully accessed this drug? My 22yo daughter has one copy of G551D mutation (the other is delta F508) and is experiencing an exacerbation of her...

Are there any other Australians that did not participate in the trial of VX -770 (Ivacafor - generic name or Kalydeco- brand name) who have successfully accessed this drug? My 22yo daughter has one copy of G551D mutation (the other is delta F508) and is experiencing an exacerbation of her...