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I really appreciate your words. Imagine how I feel. He died a few months shy of 16 and I'm almost 50. I would gladly trade places. Who am I? Heck, I don't deserve to be here. We both have the same desease. I live and yet he dies. It makes no since to me. He suffered more than I, although it's...

Jean, thanks. Your kind words really mean a lot. My only goal is to use organic search engine optimization techniques to enhance the rank of www.randysnider.com, not only pay tribute to Randy but to raise awareness of the Cystic Fibrosis Foundation and other organizations. CFF has given approval...

BeautifulSoul, I will add www.engagedgaming.org to www.randysnider.com today, hopefully. I think Justin is doing a very noble thing and I do hope it helps you as well as other CF patients, including me. I couldn't save Randy but maybe all of our efforts will bring more awareness and...

Thank you for you thoughts mommafirst. I do hope that you and family are well. Be well and all the best. - Randford

Amber, thanks so much for your thoughts. God bless you. Randy is my nephew and I also have CF but it's not about me. It's more about younger folks like yourself. I've pretty much lived my life but I want to see you live a long life as well. Thanks for kudos on the site. I created it. It's what I...

On August 19, 2005, Randy Snider lost his battle with Cystic Fibrosis at the young age of 15. He was a brave soul. He battled everyday just to live and through the pain, he made us all smile. He gave us all a purpose. We love and miss him very much. A website was created in his memory to...

On August 19, 2005, Randy Snider lost his battle with Cystic Fibrosis at the young age of 15. He was a brave soul. He battled everyday just to live and through the pain, he made us all smile. He gave us all a purpose. We love and miss him very much. A website was created in his memory to...

Thanks, mwinston87. I'm looking forward to the aftermath. My deterioration has been so subtile that it's finally caught up with me. I'm sluggish all the time because my blood is not preperly oxygenated. I'm just wondering how long it will take before I start seeing an improvement.

Yeah, I've been a little stubborn about starting on it but the CF doc says it prevents further damage from daily "exacerbation" of tissue due to common and uncommon exposure. So I better get on it and deal with it. I'm kinda nervous but who am I to feel that way. There are so many of us who...

I so pray that your son lives a long and full life. He deserves many years ahead. Thanks for your information. Does he get a sore throat sometimes? If so, is it more from the saline or from coughing?

Thanks Jen. Not TMI at all. You're pretty tough! Hang in there. I don't know what to expect. I do have to use the Portex Acapella in addition to the Peri Vios. I have everything set up for cleaning just as my nephew had years ago. It's tough for me to think about. I'm walking in his shoes now...

SicklyhatED, thanks. That doesn't sound too fun but thank for the info. I really appreciate it. I'll be getting my compressor in about a week if not sooner. I sure hope it helps. I'm really not sure what to expect. I've noticed bronchial tightness whenever I do anything physical and I can tell...

By the way, the new CFpulmonologist at Emory is awesome. Great guy. Dr. Seth Walker. So is the rest of the crew! Dr. Tangpricha rocks the house. Jessica, Shaina, Mews and Renee are the best! http://www.emoryhealthcare.org/cystic-fibrosis/our-group.html Randford (49, DF-508, P140S, Osteo)

So it's that time. I'm officially starting on hypertonic saline for the first time.It seems pretty simple. Does anyone have any advice or experiences to share? Are there any cautions? Thanks! Randford (49, DF-508, P140S, Osteo)

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Printer</b></i> Last September I was inpatient at Massachusetts General Hospital, in Boston. While there, one of the nurses told me that they, recently, had a CF patient in the hospital (for non cf issues) who was in his 90's. The...

Folks, For those of you who have CF-related osteo, many are on bisphosphonates like Fosamax, Boniva, Actonel, Atelvia, Reclast or Forteo. I'm not recommending that you replace what your doctor has prescribed. Keep taking what you're doctor recommends.If nothing is working, the alternative is...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Printer</b></i> Randy: The thing that causes malpractice court cases and malpractice awards is malpractice. Try to find a PCP who can explain CF. You wont have any problem finding a PCP willing to treat CF. Bill</end quote> I agree. I...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Printer</b></i> Randy: You are covered under your BCBS policy, nothing changes with Obamacare until 2014. Bill</end quote> Printer, I guess like most everyone else, there is really nothing thatwe can do until 2014. Hopefully all thes...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Printer</b></i> I just can't understand why anyone with CF or anyone with a child with CF could be opposed to the AFFORDABLE HEALTHCARE ACT. Bill</end quote> I agree with you, Printer. Unless there is something ou there that has not...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Printer</b></i> Randy: You are covered under your BCBS policy, nothing changes with Obamacare until 2014. Bill</end quote> You're right, Printer. Maybe by then, there will be a clearer picture of what is expected.