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Our child was diagnosed a year ago. CF has a pretty big learning curve. It rocks your world. I have new blog with just a few posts that articulate some of the emotions/thoughts I have had as a parent of a child with CF. Visit at <a target=_blank class=ftalternatingbarlinklarge...

Our child was diagnosed a year ago. CF has a pretty big learning curve. It rocks your world. I have new blog with just a few posts that articulate some of the emotions/thoughts I have had as a parent of a child with CF. Visit at <a target=_blank class=ftalternatingbarlinklarge...

Our child was diagnosed a year ago. CF has a pretty big learning curve. It rocks your world. I have new blog with just a few posts that articulate some of the emotions/thoughts I have had as a parent of a child with CF. Visit at <a target=_blank class=ftalternatingbarlinklarge...

I'm finding people are saying it's related to aquagenic palm wrinkling. CFer's tend to get pruned very quickly in water. I think the peeling happens some time later and might be related.

I'm finding people are saying it's related to aquagenic palm wrinkling. CFer's tend to get pruned very quickly in water. I think the peeling happens some time later and might be related.

I'm finding people are saying it's related to aquagenic palm wrinkling. CFer's tend to get pruned very quickly in water. I think the peeling happens some time later and might be related.

Seems like most have addressed the childcare. Regarding finances there is an organization in WA called Breathe 4 Tomorrow that helps families with CF with financial struggles. I don't know the details but you might try it online. Also, there is a site called NeedyMeds that has a discount card...

Seems like most have addressed the childcare. Regarding finances there is an organization in WA called Breathe 4 Tomorrow that helps families with CF with financial struggles. I don't know the details but you might try it online. Also, there is a site called NeedyMeds that has a discount card...

Seems like most have addressed the childcare. Regarding finances there is an organization in WA called Breathe 4 Tomorrow that helps families with CF with financial struggles. I don't know the details but you might try it online. Also, there is a site called NeedyMeds that has a discount card...

Does anyone know why CFF recommends the Nuk sterilizer and not the Avent?

Does anyone know why CFF recommends the Nuk sterilizer and not the Avent?

Does anyone know why CFF recommends the Nuk sterilizer and not the Avent?

My son is on it. I give him one tsp at night. I was to begin a day time dose and haven't. I could tell it makes him sleep hard and don't want to make him drowsy during the day. We will see in July how much he's gained. I'm thinking he's gained a least three pounds. However, we are also...

My son is on it. I give him one tsp at night. I was to begin a day time dose and haven't. I could tell it makes him sleep hard and don't want to make him drowsy during the day. We will see in July how much he's gained. I'm thinking he's gained a least three pounds. However, we are also...

My son is on it. I give him one tsp at night. I was to begin a day time dose and haven't. I could tell it makes him sleep hard and don't want to make him drowsy during the day. We will see in July how much he's gained. I'm thinking he's gained a least three pounds. However, we are also...

I'm new to all this..........but why/how would neb treatments infect you with psuedomonas?

I'm new to all this..........but why/how would neb treatments infect you with psuedomonas?

I'm new to all this..........but why/how would neb treatments infect you with psuedomonas?