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Thank you for your time, and Printer for your reply. I apologize for interfering in the subject and I am pretty sure that language is my barrier in understanding. I live in Greece, by the way, and unfortunatelly things here arent so good with CF. Imagine that there are only 3 clinics for Cf in...

Thank you for your time, and Printer for your reply. I apologize for interfering in the subject and I am pretty sure that language is my barrier in understanding. I live in Greece, by the way, and unfortunatelly things here arent so good with CF. Imagine that there are only 3 clinics for Cf in...

vivsmom thank you for your time to reply to my question. I am a carrier of CF, so is my brother and husband, and our only child of 14 months. Its just that I thought that carrier and sufferer are completely different. I mean, as far as I know a carrier doesnt exhibit any health issue whereas a...

vivsmom thank you for your time to reply to my question. I am a carrier of CF, so is my brother and husband, and our only child of 14 months. Its just that I thought that carrier and sufferer are completely different. I mean, as far as I know a carrier doesnt exhibit any health issue whereas a...

Hello again and thanks for the so precious advice!!! Gotta admit things here are not so well with informing parents and the foundations on cf are way back in the middle ages! I am now trying to find out how to get the sort of pension for my baby boy,and the paper work it needs is unbelievable! I...

Hello again and thanks for the so precious advice!!! Gotta admit things here are not so well with informing parents and the foundations on cf are way back in the middle ages! I am now trying to find out how to get the sort of pension for my baby boy,and the paper work it needs is unbelievable! I...

Hello to all, may I ask whether you are all carriers? Because as far as I am aware sufferers of CF need medication and enzymes, and they are diagnosed early in life. Please let me know, since we have a big debate over here, on whether a sufferer can be diagnosed so late as at their 40s! Thank...

Hello to all, may I ask whether you are all carriers? Because as far as I am aware sufferers of CF need medication and enzymes, and they are diagnosed early in life. Please let me know, since we have a big debate over here, on whether a sufferer can be diagnosed so late as at their 40s! Thank...

Thank you all so much for the replies, you have all been great help!!! I agree with u sjzbell that each cf is unique! I am very confident we will do great, calling a physio first thing tomorrow morning so as to arrange private tutoring!!! Need to become an expert on pt, I realized anyway that...

Thank you all so much for the replies, you have all been great help!!! I agree with u sjzbell that each cf is unique! I am very confident we will do great, calling a physio first thing tomorrow morning so as to arrange private tutoring!!! Need to become an expert on pt, I realized anyway that...

Ratatosk thank you for your reply!!! Our gonotype is supposed to be a mild form of CF, not sure whether that means a more loose approach for me o r whether I should be more strict, especially with his PT. Dimi has 3 main meals a day plus two snack plus I'm breast feeding. Doctor advised enzymes...

Ratatosk thank you for your reply!!! Our gonotype is supposed to be a mild form of CF, not sure whether that means a more loose approach for me o r whether I should be more strict, especially with his PT. Dimi has 3 main meals a day plus two snack plus I'm breast feeding. Doctor advised enzymes...

Good evening everyone!! I'm mum of 14 month old boy with cf (F508del/2789+5G>A, think that is the gonotype). Are there any other parents of kids with this mutation?If so, please help me! We found out about it when my boy was 7 months old-summer time, he lost weight, was just starting giving him...

Good evening everyone!! I'm mum of 14 month old boy with cf (F508del/2789+5G>A, think that is the gonotype). Are there any other parents of kids with this mutation?If so, please help me! We found out about it when my boy was 7 months old-summer time, he lost weight, was just starting giving him...